Calling
out to hungry hearts.
Everywhere through endless time.
You who wander you who thirst.
I offer you this heart of mine.
Calling all you hungry spirits.
Everywhere through endless time.
Calling all you hungry hearts
All the lost and left behind
Gather round and share this meal
Your joy and sorrow
I make it mine.
'Gate
of Sweet Nectar' by
Zen Master Kon Ron Mon
"Setu"
(meaning 'Bridge') is an attempt to create a "protected community"
for wandering and homeless people with a severe psycho-social
disability. The protected community vision is fuelled by the gandhian
revivalist values of self-reliance, shared ownership and self
sustainability.
Setu's
vision
Setu
is a safe, creative and productive healing community created for
the homeless, destitute or wandering mentally ill persons in and
around Pune city. In Setu, persons with severe psycho-social disability
will be nurtured, so that they are enabled to resource their own
physical and mental energies, their resilience, creativity and
capacity, and their ability to live a life of choice with dignity
and self-respect. Setu will create livelihood opportunities for
its members by actively integrating with, contributing to and
depending on local conditions.
Legal
disempowerment and criminalisation of wandering people with a
psycho-social disability
The
wandering mentally ill have traditionally been rounded up and
taken into custody by police and lodged in prisons or mental hospitals,
sometimes languishing for years (under various Acts, such as,
Indian Lunacy Act- ILA; the Criminal Procedure Code; Bombay Prevention
of Beggary Act- BPBA; Railways Act; Corporation Act; etc.). Even
today the repealed Indian Lunacy Act is still being used for arrest.
While the practice of committing wandering mentally ill to jails
may be reduced, they are still arrested on "petty offence"
charge. Beggars' homes also transfer such persons under "crime"
charge, through the BPBA. Alcoholic men have been incarcerated,
because they were found wandering on the streets. "Trespassing"
or "public nuisance" are the most common charges brought
against such persons. Much debate has happened around the issue
of the correct placement of the wandering mentally ill, i.e.,
what type of person should be found in which type of institution.
Adjudication and human rights intervention [following the landmark
case of Sheila Barse vs Government of West Bengal] has resulted
in a peculiar legislative regime, which is monitoring only wrongful
confinement. The class action litigation proceeded on the commonsensical
fact, that the wandering mentally ill have committed no crime,
and hence, they should not be found in the jails. However, legal
intervention stopped with notifying transfer to the mental hospital,
without any reference to the possibility of curative or rehabilitatory
measures, to be instituted within the custodial institution itself.
Every city needs a community or a service program for the wandering
mentally ill people, a group identified by us as the most, most
marginalized.
The
Need for Setu
There
are over 5000 homeless families in Pune City alone, living under
bridges, on foot paths, near railway tracks, etc.
A
large percentage of them face threat to life and trauma situation
on a routine basis. Atleast a quarter of this population suffer
from various types of disabilities.
There
are little or no mental health facilities for the homeless and
wandering mentally ill people in most of the cities of Maharashtra.
Many
people with psycho-social disabilities are rendered homeless
because of lack of care and community support. 80% of people
housed in beggar's homes in Maharashtra are wandering mentally
ill. Some of them come from middle class or affluent families.
Mental
Hospitals do not anymore admit or treat wandering mentally ill
as readily as they used to before.
Wandering
mentally ill are driven out of mental institutions or homes
before a visit by any inspectorate or monitoring authority.
70%
of psychiatrists in Pune city, being in private practice, do
not treat the homeless or the poor and show general apathy towards
this population.
Wandering
mentally ill women living on the streets are vulnerable to physical
and sexual abuse.
Wandering
mentally ill people are discriminated against and treated as
criminals in Maharashtra through many oppressive acts.
No
custodial institution in Maharashtra (jails, mental hospitals
or beggars home) has the necessary infrastructure or capacity
to create livelihood opportunities for this population, this,
being the most fundamental need.
Wandering
mentally ill face harassment and torture by the police and often
succumb to the predatory nature of life on the streets.
Few
custodial institutions in Maharashtra are in a position to provide
safe and holistic health care or mental health care to their
clients. There is no concept of service provider and client
in these institutions, because of their overwhelmingly custodial
nature.
In
Pune city, no NGO is working with the public institutions in
the care of this population.
Site
"Sadhana
Village", a rehabilitation facility for adults with mental
disability (handicap), was established ten years ago, in Paud
gaon, in Paud Taluka, Maharashtra by Mr. Deshpande. It is 9 kilometers
from Paud gaon (on the high way to Mulshi). They are a community-based
program, with a vision of integrating their residents into the
neighboring culture and in the process, developing the entire
valley. Sadhana Village is considered to be a resource organization
by the valley (comprising mostly of farmers and small traders).
The area is water / rain rich, fertile with a rich agriculture
/ animal farming base. NGO, development and social activities
in the region have been on strengthening the agricultural economy.
Land is available with Sadhana Village, which they have committed
to Setu project, on a long lease of 99 years.
Feasibility
The
site offered to us by Sadhana village is located on the hills,
in a private real estate project (Girivan). Based on feedback
from Sadhana Village managers, initial assessment by a waste /
soil expert, and from Bapu trustees, the project site is feasible
for the work envisioned.
1. Presence of Sadhana village over several years has established
an environment of understanding and synergy in the locality. Two
initiatives, Sadhana and Setu, working shoulder to shoulder, can
only strengthen community development work in mental health.
2. Local soil and farming situation is satisfactory. Horticulture,
vermiculture and other entrepreneurial projects can be set up.
3. The terrain (on the hill) is a bit rough, but not overwhelmingly
so. The environment is pleasant, very scenic and very therapeutic.
4. Sadhana Village has and is trying various soil-based projects
in the region. We can exchange ideas on this and work together
on creating livelihoods in the region.
5. The site is approachable by public transport: Buses ply up
to Paud gaon. 9 ST buses go through Sadhana village. But there
is a need for a vehicle to go upto Setu site, which is 5 kilometers
away from Sadhana Village.
6. Setu site is an hour away from Paud Road, Pune. Staffers can
probably be drawn from Karve Institute, SNDT social work department,
etc.
7. Commercial projects in the area: Girivan project itself; nearby
institutions (Mahindra World College; Flying Club; other local
industries dotting the region; many small weekend getaways and
resorts); small trades.
Risks
1.
Visitors may find it difficult to reach the site.
2. Transfer of persons to the community definitely requires a
vehicle.
3. It may not be easy to organize emergency or crisis health facilities
from the site, though we have not visited the local PHC / rural
hospital.
4. Economy is based on rainfall.
5. Staffers with a particular interest in staying in the community,
and interested in taking care of persons with a high degree of
psycho-social disability, may be difficult to find.
6. The ambitiousness of the project, ideas on the long-term sustainability
of the community, staff motivation problems and the issue of burn
out.
What
is the Setu "program"?
Description
of Setu Setu
would be based on principles of independent living, livelihood,
self-determination and self-sustenance. We do not want to start
a "service program", as this will inevitably lead to
custody and supervision type of model driven by medicines. The
aim is more to develop a community, based on local architecture,
resource and economy. It would be something that the community
will share, develop and own. Capacity building for livelihood
would be with a view to creates entrepreneurs who will be able
to live in the locality or seek jobs in the nearby city. Medicine
and health would be one part of the service, but most activities
would be creative, healing and development of skills leading to
independent living and social bonding.
Who
are the community members? We
expect persons with the following background to be members of
Setu:
1. Persons who are recovered from institutions, but who do not
have a family to go back to and
2. Persons who have a severe psycho-social disability, who require
intensive or long term care and rehabilitation. So we are referring
to the truly homeless, those who feel that they have "no
place in the world". We expect that many of these persons
will have a severe disability. Such persons will be invited into
an already developed community.
Planting
a "seed" community Persons
with a severe psycho-social disability would be welcomed into
a community of people (and not into a community of service providers).
These people would have already established community living here
and have developed a degree of social bonding and integration
into the local neighbourhood and social life. This "seed
community" could be psycho-socially able, but be drawn from
other vulnerable groups in Pune (deserted women, women in shelters,
etc.) Persons, from institutions or from community work, who are
looking for a shelter, will be transferred to the facility. Before
such transfer, they will be given orientation to Setu
to see if they like the place and want to settle there. In Setu,
they will be settled into their daily routine of housing, clothing
and basic living. 10 to 12 such people would initially set up
house in Setu and prepare to receive others.
After an initial process of registration, and evaluation, they
will be offered initiation into the community. News about the
available facilities will be shared with them.
They would also be trained into being local "carers"
or barefoot "counsellors". Among them, certain initial
responsibilities will be discussed and shared, based on interest
and initiative.
In
the first year of Setu…
we
contract with various parties, transfer of land, and architecture
for community living, construction, fund raising and finding
patrons for the community.
we
settle 20 men and women as the "seed" community.
we
establish a society of caregivers in the community and routinise
activities
we
start some soil / animal based activities
we
streamline connection with the city and especially nearby health
facilities
our staff will be in their station, ready and trained
we
network with the local authorities, the farming community
we
work on the formalities of living in the society (membership
/ co-operative / society; rules for daily living, support, caring
and sharing, and livelihood).
we
establish co-ordination with Bapu office on monitoring, evaluation
and audit aspects
we
contract various resource persons to give us assistance in different
ways: volunteering, service provision, therapies, leisure and
sport activities, entrepreneurship, use of IT, etc.
we
strengthen relationships with neighbouring NGOs
we
do extensive awareness programs, to raise whatever resources
are possible in cash or kind (funding, donation of clothes,
play things / outdoor sports items, art materials, books, movies
/ CDs, music tapes or CDs, furniture, curios and house warming
items, curtains, cushions, music system, computer, used bicycles,
spiritual items, ceiling fans, etc.)
we
have a final blue print for setu to receive and care for those
for whom it was created.
Second
year, and following… In
the second year, and following that, Setu will function as a full-fledged
community.
Architecture
The architecture will be as close as possible to a natural community,
having a village type of arrangement (no concrete brick high rise
buildings), using local materials (e.g. mud brick compression).
Initiation
of members
Initiation of persons with a severe psycho-social disability into
the community will be through the use of massage, acupressure,
healing baths and creative work (drums circle is particularly
effective in bringing people back into their present). Body therapies
are an innovative and culturally friendly way of healing people
with a psycho-social problem. The need for medication will be
based on policy, review and professionally guided health care
evaluation.
Living
in Setu
Spaces in Setu will be organized such that the following activities
are done, in as free an environment as possible (that is, people
can do what they want and have the choice to organize their own
days): farming, play, meditation, creative arts, leisure / music,
physical activities, learning a skill, etc. Private spaces will
be created for everybody, however small it may be. Letter writing,
journal keeping, and biblio-therapy will be proposed as healing
activities for those who are literate. For others, totem expression,
tribal painting and other regional forms of self-expression can
be proposed. Programs organized will be based on expressed need.
Health care check ups will be regularly organized for those in
need. The vehicle will be used for emergency situations.
By the end of the second year, we hope that 20 more people would
have joined the community, taking up the total to around 40.
Livelihood
By the second year, livelihood opportunities would have been thought
about, planned and a blue print established. This may require
separate raising of resources (e.g. investigating local work opportunities).
Until develops into a self-managed society, these carers would
require livelihood support. Support would also be required for
their over all living and health care.
From the third year, active efforts will be made to resettle the
fully able members into the neighbouring community or in the city
(Pune). We expect people to leave the community, for better livelihood
opportunities in the neighbourhood or in the city. For this, employment
or income generating projects will be set up from the 2nd year
onwards, in the neighbourhood (e.g. in the Girivan resort). Contacts
would be made with possible and available sources of employment
in the neighbourhood. Skill building for employment will be based
on such real opportunities and based on local demand. Savings,
credits, co-operatives are other possibilities.
We will do very little of "vocational trainings" such
as match stick making, or candle making in the initial stages.
Taking up production based projects in Setu may be possible only
if we have good communication strategies for retailing products
(such as website business).
Community
life Imaginative
ways have to be found, for synergy with the local community. Community
life is based on give and take. Setu, like Sadhana, will have
to be an active resource giving community, so that there is dignity
in asking for return favours / contributions or partnerships.
To this end, certain activities (such as health camps / consultations)
will have to be for the local community as well. We do not see
any way of making a success of Setu without also at the same time,
taking up local development work.
In facilitating Setu, we will strive to keep
our own intervention to the minimum, to the extent of creating
an enabling, safe space where people can establish themselves,
their lives and relationships, their work and livelihood, and
create their own community.
Self-reliance
and scope for investments in the neighbourhood We
hope that the available premises will be adequate for vegetable
and fruit farming, supplying Setu. Herbal gardens
are also a possibility (such as wheat grass or aloe vera).
We will aim at self-sufficiency by undertaking agriculture and
other commercially viable projects in the neighbouring areas.
Ideas, which have come up, are: setting up a retreat for NGOs,
for Bapu training programs, and as a retreat for other training
NGOs. The location is perfect for this activity. This is a very
viable idea, and we will explore this further. A third idea is
worm culturing and starting a nursery, to supply the local institutions.
There is rich potential in developing neighbouring areas to serve
these projects. Such projects would also help in absorbing the
Setu residents in gainful employment.
Ethical
issues Those coming into the community would be mainly drawn
from the institutions / community programs, which Bapu is already
running (beggars' homes; mental hospital; other community programs).
In working among the homeless disabled, there is a large and controversial
issue of informed consent. Setu will work out the ethics and the
process of transfer. It will not force anyone into the community,
nor will it stop anyone from leaving the community. It will not
be run on a supervisory or custodial model. The health care part
of the program will work on different principles (evidence base,
professionalism, managed care) than the social care part of the
program. Imagination will be used in trying to integrate informed
consent procedure through the active intervention phase. Active
intervention process at Setu will work on protocol basis only,
with considered policy on health care provision, hospitalisation
and use of psychotropic drugs. In the social care part, there
will not be a regimentation of routines, and force on participating
in activities. Setu will be mindful of the interphase with the
law, the judiciary and the police and will be advised by Bapu,
on ethical and advocacy issues in the initial stages. Once the
community is well established, the community will develop its
own ethics, with facilitation by Bapu throughout the project period.
There will be parts of the Setu community and social life where
Bapu will play little or no role and the neighbourhood community
will play a larger role. There would also be the ethics of planting
too many members with a psycho-social disability among the seed
community, as the seed community would burn out. Perhaps a limit
will be set (such as not more than 50%) to balance those psycho-socially
abled against the disabled. Forced labour, child labour, poor
wage contracting, abuse of workers, etc. will be monitored if
persons from Setu go out to work in the neighbourhood. Advocacy
will be kept up for social security for Setu members. Appropriate
registrations and individual memberships with local authorities
(the Disability office) will be sought so that the stake of the
community in the disability discourse is not lost.
Offers
received so far 1.
An international aid agency is working with us to finalise the
program part and to consider financing us for a 5 to 7 year period.
2. Private donations assured of up to Rs. 10 lacs.
3. Persons with good background on soil based entrepreneurship,
vermiculture, organic farming and art therapists have offered
their time and services to Setu at a nominal cost.
4. A private sponsor is preparing promotional cards for creating
publicity and awareness.
5. Beggars' home authorities have offered to consider our proposal
for transfer of persons from their home to Setu, and are able
to pay Rs.35/= per person per day, to cover rehabilitation cost.
6. Mental hospital authorities and beggars home authorities have
offered to make some space available within their premises for
us to initiate rehabilitation within the institution.
7. We are talking to the local authorities to make available to
us some space for community work among the wandering homeless.
What
you can do for us
If
you are a mental health professional or a practitioner of integrated
medicine, looking for a challenge, this is it! We need professionals
with a view to provide integrated care to persons who may have
been institutionalized for a long time.
We
need someone to think imaginatively and make a community housing
plan suited to the locale and with an eye on low cost.
We
need financial and technical assistance in construction of the
community housing, once the plan is finalised.
If
you are looking for making a donation, giving technology or
building a partnership to develop a commercially viable but
value driven project in and around Setu, do contact us. Project
possibilities are - organic farming, vermiculture, a retreat
for training programs, herbal medicine, bee keeping, etc.
We
need financial assistance in infrastructure development of the
community, including donation or purchase of any asset such
as vehicle, equipment, etc.
You
could sponsor the life of one resident until his or her rehabilitation
happens, at the cost of Rs. 3000/= per month for a period of
12 months.
You
could sponsor any of our development programs or activities
in the local areas.
These
are technical or financial commitments. Outside of these, you
can share news about Setu with others, volunteer time to the project,
etc.
Thank
you.
"It
is our firm belief that, for good mental health, people need
nourishing food, satisfying employment, unpolluted air, healthy
environment, leisure, physical fitness, a caring supportive
community and creative opportunities for realizing one's potential
and dreams. Setu aims to be such an endeavour. We appeal to
everyone with high emotional and spiritual quotients to seek
us out and contribute in whatever way you wish. The deeper roles
we intend to play in people's lives, in an increasingly complex
and lonely world, actually may lessen the number of wandering
'mentally ill' in society."
Bhargavi Davar,
In-charge- Setu project,
using the vital energies and inspirations
from a wide collective of like minded persons
who together birthed 'Setu'
Contact us:
Setu A program initiative of Bapu Trust Kapil Villa, Plot no. 9
Survey No. 50/4, Kondhwa Khurd
Pune-411048
Tel: 020-26837644/47
Email: wamhc@dataone.in; info@camhindia.org