aaina - a mental health advocacy newsletter : november 2001
Vol. 1 No. 3

November 2001

 

Editorial

 

surviving institutional care

Two major events have happened in the last quarter, requiring our immediate response and energies.

On August 6th, 28 people labelled as ‘mentally ill’ in Badhusa mental home in Erwadi Dargah, Ramanathapuram, Tamil Nadu, perished in a fire. No one was questioned, no one arrested and none punished. In this issue we remember the victims of this ‘inhuman holocaust’ perpetrated by private trade and brokering of mental patients.

The Erwadi holocaust caused a lot of public outrage. For the first time, newspapers, professionals, NGOs, the state government, the Supreme Court, the National Human Rights Commission, human rights activists and lawyers, all made immediate and heart felt responses. However, two months later, in October as we write this editorial, the Erwadi holocaust, and the multiple questions that it raised, is a distant memory- a forgettable nightmare.

Aaina will again and again remember the many human lives sacrificed and wilfully wasted in Erwadi, and in many places like Erwadi. We’ll not allow ourselves to forget. When we remember Erwadi, we also remember our own agency in excluding people amidst us with the label of ‘mentally ill’. We remember a friend, a cousin, an aunt, an old uncle, who we have not stopped from being forcibly institutionalised. We remember a wandering lunatic, a voluntary boarder, a Cell-XYZ patient, a substance addict, who died due to neglect- dehydration, gastroenteritis, diarrhoea or badly administered ECT.

Now the second event- On 4th of October, Malati Ranade the first psychiatric social worker to be appointed to Yerawada Mental Hospital, Pune, passed away. For us, she is an icon in mental health activism and we remember her. We remember her, not as a saviour, but as a survivor… someone who doggedly survived the oppressive conditions of the asylum where she worked and who fought it to the very end in the name of humanity.

We dedicate this issue of ‘aaina’, then, to the inmates of Erwadi, to Ms Malati Ranade and to the thousands of victims and survivors of mental institutions in India, both private and public, for whom no memorial has been built, no songs have been sung. No one recorded their oral histories, no poem was ever written for them and none lit a candle in remembrance. Thousands have died, forgotten and alone, on the hard cold floor, unclothed and uncleaned, lice in hair for company, with not a warming touch for years. For aaina, August 6th is a day of remembrance and of grief.

   

Contents

Reflections: Surviving Institutionalisation 2
Protection of Human Rights Act, 1999 4
Malatitai Ranade- A Tribute 5
Erwadi: The Chronology 6
Erwadi Holocaust 8
Bapu Archives: "Be a good patient now..." 10
On Non-compliance 12
Bapu events: Facilitating Legal Activism in Mental Health 14
Media Desk: The "Mandate" 15
Speaking our minds: Save me from my therapist 17
Spotlight: Psychosocial Rehabilitation 19
Images: This winter I thought of death 20
 
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reflections

Surviving Institutionalisation

   

Dr Amita Dhanda

     

Persons kept in chains without authority of law allegedly ‘mentally ill’ – were burnt to death. The situation was within the knowledge of a number of public officials and the National Human Rights Commission, yet no steps were taken to remedy it. Evidently cruelty and exploitation if interlaced with religion have to be overlooked and condoned.

The question however is: what can concerned citizens do when Erwadi-like situations come to the fore. Amongst the various investigations such a general query requires, one, which necessarily needs to be raised relates to the legal management of the issue. Thus we need to know how does law deal with this situation and what remedies if any are provided under it.

The Mental Health Act of 1987, a special legislation dealing with the institutional care and treatment of persons with mental illness, requires that a license be obtained before a psychiatric hospital or nursing home is established. Any person who maintains a psychiatric hospital or nursing home in contravention of the Mental Health Act shall in the first instance be punishable with imprisonment for a term, which may extend to three months or with fine up to Rs. 200/- or with both. Second and subsequent offences are punishable with imprisonment for a term which may extend to six months or with fine which may extend to Rs.1,000/- or with both. This section even with its limited sanctions does not allow for citizen enforcement as no court shall allow the prosecution of this offence unless the previous sanction of the licensing authority has been obtained.

   

(...continued on page 3)

     

Editorial Team
Bhargavi Davar
Sadhana Natu
Radhika Kulkarni
V. Radhika
Soumitra Pathare

 

aaina is a mental health advocacy newsletter. Advocacy demands critical, creative and transformative engagement with the state, policy makers, professionals, law, family and society at large. aaina will thematically cover issues in community and mental health, NGOs in mental health, self-help and healing, non-medical alternatives in mental health, rights, ethics, policy and needs of special groups. aaina provides a forum for user expression of their experiences with mental health services and debates issues concerning rights of persons with psychiatric disabilities. We look forward to meaningful dialogue with individuals and groups alert about these issues.

Those interested in receiving copies of aaina may contact us at wamhc@vsnl.net. Write to us with all your suggestions, criticism and viewpoints on the issues covered.

 

Design and Layout
Anand Pawar

Printing
Anita Printers, Pune

 

Contact Address

7, Krishna House
Fatima nagar
Pune- 411 013

Tel. 6872672
Email: wamhc@vsnl.net

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Another provision of the Mental Health Act makes improper reception of persons with mental illness in a psychiatric hospital or a nursing home punishable. Improper reception means wherein a procedure of admission other than the one provided by the statute is utilised. This offence is punishable with imprisonment up to two years or with fine up to Rs.1,000/- or with both. With such like penalty the above said offence in accordance with the classification provided by the Code of Criminal Procedure is non-cognizable. This classification means that no policing authority will investigate the above said offence without an express order from a magistrate. Once again citizen enforcement will be difficult. Furthermore a question will arise whether private custodial houses like those around Erwadi could be categorised as psychiatric hospitals and nursing homes.

A registration - licensing regime also subsists under the Persons with Disability Act, 1995. This statute requires permission to be obtained from the competent authority before an institution for persons with disability can be established. Disability has been defined to include mental illness. Consequently without obtaining such permission institutions for housing persons with mental illness cannot be established. And licenses of institutions, which breach the statutory regimen, can be revoked. Even as infringement is not criminally punishable an option of reporting to the Chief Commissioner or the State Commissioner of disability exists. These Commissioners have been empowered to take necessary steps for protecting the rights of persons with disability. These necessary steps have not been described in the statute, but should, through a process of interpretation be held to include release, rehabilitation and compensation of persons with mental illness in illegal custody. The Commissioners can themselves take note of the breach of rights of persons with disability or a complaint to this effect can be made before them by any person in the know of such infringement. The Persons with Disabilities Act is a recent statute. In the absence of express remedial procedures the possibilities of the law for persons with mental illness in need of institutional care will primarily depend upon the activism of individual Commissioners.

A process of enforcement alternative to these special legislations exists within the general criminal law. Sections 339 and 340 of the Indian Penal Code define wrongful restraint and wrongful confinement. Where wrongful confinement subsists for ten or more days it is punishable with three years imprisonment and fine. This punishment makes the offence cognizable, which means that policing authorities are under an obligation to initiate investigation upon receiving information of the offence.

 

The treatment meted out to persons with mental illness at Erwadi and other such places comes within the definition of wrongful confinement. Criminally proceeding against the perpetrators of such like practices is perhaps the most potent of all the options mentioned above. As in contrast to enforcing licensing regulations, upholding the criminal law of the country is a non-negotiable duty of policing authorities.

Other than the above described statutory regimes the Constitution of India guarantees to all persons the right to life and liberty. This right cannot be deprived except by a procedure, which is just, fair, and reasonably contained in a duly enacted legislation. These appellate courts also have the power if they think fit to grant compensation for the inflicted deprivation. This remedy can be activated bonafide by any public-spirited person on behalf of the deprived individuals. A large number of public interest actions have been filed in several High Courts and the Supreme Court of India on the abysmal conditions prevailing in the mental hospitals in the country. Consequent to these petitions the apex court has laid down guidelines for living and treatment conditions in mental hospitals and also ordered the discharge of persons who have recovered from illness. These petitions have provided symptomatic improvement in a specific hospital or provided relief to a particular individual. However no kind of structural reform of the mental health system has happened because of the public interest actions. The one major gain of these petitions is acceptance of the premise that persons with mental illness are bearers of rights. And these rights when infringed should be redressed. Persons confined in the Erwadi custodial houses are being definitely deprived of their life and liberty and there is no legal procedure, which authorises this deprivation. Consequently both the concerned High Court or the Supreme Court can be approached to seek the release of the confined persons. The difficulty here of course is where should the persons with mental illness be housed upon release as so many of them have been abandoned in these places by their kith and kin.

The legal regime mapped out above is aimed to show that there are legal norms for the institutional care of persons with mental illness. For these legal norms to become the ground reality of persons with mental illness it is important that there is a ground swell of self advocacy backing them as it is in advocating their own rights that persons with mental illness have been most handicapped.

Amita Dhanda, a well known disability advocate, can be contacted at amitadhanda2000@yahoo.com

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The Protection Of Human Rights Act, 1999

 


The National Human Rights Commission was instituted by the Protection of Human Rights Act, 1999. Nowadays there is a tendency to file cases with the NHRC because of its promise and easy access. However, what is the framework of this Authority, and what are its powers and limitations?


The NHRC is constituted of senior members of the central and state jurisdiction. It depends on the central government for funds after due allocation made for this by the parliament. Grants from the state government are also given subject to conditions. The annual report of the commission has to be sent to the central government and received by the house of parliament. These reports have also to be made at regular intervals and published.

The commission is mostly an advisory body having powers to intervene in proceedings involving any allegation of violation of Human Rights pending before court. Other work includes human rights literacy, the rights to review, inspect, study, and promote research and NGO activity. It has the powers to summon and enforce attendance of witnesses and examine them. It can also demand any public record or document and demand the services of any officer or investigation agency of the central government and the state government for purposes of completing any inquiry. The commission can recommend various steps to be taken by the government and approach the Supreme and High Court for implementing these proposals. The commission shall be deemed to be a civil court when necessary and every proceeding before the commission shall be deemed to be a judicial proceeding. For speedy trial of offences, the state government may specify for each district a court of session to be a human rights court to try the said offences. For every human rights court, the state government shall specify a public prosecutor or appoint a highly experienced advocate.

 

The Commission can, among others, review factors that inhibit the enjoyment of human rights, review the safeguards provided under the Constitution or any law for protection of human rights, undertake and promote research in the field of human rights and study the living conditions of the inmates of any institution under the control of the State Government where persons are detained or lodged for the purpose of treatment, reformation or protection and make suitable recommendations for protection and promotion of human rights.

What are the ground realities that delimit these powers? The Commission functions as a searchlight, by conducting valuable investigations. However, it remains more or less an advisory body and it suffers from various limitations such as the lack of the tools required for implementation. For example, the commission cannot inquire into any matter after the expiry of one year from the date on which the act constituting violation of human rights is alleged to have been committed. Lack of enforcement power seems to be another important limitation to the powers of the commission. The fact that they are open-ended and therefore it is easy to "show" compliance with them, although valuable, might undermine recommendations of the committee. The most important limitation is that the commission deals with the cases of violation on an ad hoc basis. It deals with cases, which approach them, but does not have any mechanism to reach the needy. However, persons committed to mental institutions may not always be in a position to seek justice, and therefore may never be able to appeal the commission. The limited provisions must be used effectively while at the same time for greater recognition of the human rights of those with psychiatric disabilities.

(Source: Protection of Human Rights Act 1999, available from NHRC, New Delhi.)

 
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Malatitai Ranade – A Tribute

(August 10th 1917 - October 4th 2001)

Ujwala Mehendale

     

Malatibai fought with the concerned authorities over many issues. Her deepest concern was with inmates’ proper treatment, right to psychosocial rehabilitation, human dignity and fundamental rights. After retirement, she filed a number of cases against the state government authorities where she felt the inmates’ human rights had been violated."


"Malatibai was a hard taskmaster, affectionate and broad-minded. She was my teacher, my elder sister, my family friend and what not…"

"Malatibai was a crusader for justice. Unable to tolerate injustice of any kind, she always stood by the side of the wronged ones ... She instilled in us the spirit to fight against injustice."

"Only because of her dynamic presence, the team spirit was maintained in the larger interest of rehabilitation, keeping professional ethics intact and built around the core of sincerity and dedication."

These remarks made by Sudhatai Datar and G.R. Golam, both senior colleagues of Malatitai Ranade spoke volumes about Malatibai as a social worker and as a person. Malatibai Ranade was among our country’s first officially recognized psychiatric social workers who graduated from the Tata Institute of Social Sciences. From the time of joining Yerawada Mental Health Institute in 1949, mental health was her life and mission. Malatibai’s spirited presence at Yerawada spanning 24 long years of service was nothing but distilled and pure Mental Health Advocacy, even that, at a time when these words were totally unheard of.

Malatibai not only had the formidable task of proving the necessity and credentials of her own post in an asylum- that of a psychiatric social worker- but she also had to establish her own role, its scope, functions and daily activities, being faithful to her education and training. The credit for establishing a well defined and documented system of case work, a system of fact finding, home visits, diagnosis, all aimed at rendering better treatment to the inmates at Yerawada goes entirely to Malatibai. In fact home visits, a very necessary activity in rehabilitation, was initiated by her against all odds. It was considered ‘unnecessary’ by the institute authorities. Malatibai paid for every single home visit that she made during her service.

 

Malatibai was appalled to see the living conditions of the mentally ill at Yerawada. She was openly critical of the Visitors’ Board appointed by statute to look into the Institute’s functioning. Most of the Board members were government officials. Instead of patient welfare, trivial issues were given top priority. Malatibai fought with the concerned authorities over many issues. Her deepest concern was with inmates’ proper treatment, right to psychosocial rehabilitation, human dignity and fundamental rights. After retirement, she filed a number of cases against the state government authorities where she felt the inmates’ human rights had been violated.

During her long career, Malatibai dealt with more than 10,000 patients. Being the only psychiatric social worker at the Institute initially, she was at times looking after over 200 patients single handedly. Malatibai had many ideas and suggestions to improve the quality of treatment and service rendered. This is amply evident in her writings, especially her book, Manorugna: Katha ani Vyatha (‘Mental illness- Stories and Miseries’) which won the State Govt. Literature Award in 1982.

Even after retirement Malatibai continued to work with those in need of help. Counseling activities were in full swing, free of cost, of course, till the very end. She was an avid reader, promptly applying newly acquired knowledge in her day-to-day work. She was lively, alert, gracious…her usual self till her last. She lived a full, long life, totally committed to mental health, which ended at the age of 86.

The highest tribute we all can pay Malatibai would be in being committed to strive for greater well-being for those labeled mentally ill in our own capacities and safeguarding their human rights.

 

(Special thanks to Sudhatai Datar who generously shared newspaper clippings diary jottings, Malatibai’s book and most precious of all, Malatibai’s memories. She also kindly forwarded Mr. Golam’s letter.)

Ujwala Mehendale is a free lance writer in Pune and can be contacted at ujemi@yahoo.com

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Erwadi: The Chronology


In a desperate effort at providing ‘symptom relief’, the Jayalalita Government paid compensations to the families of people labeled with mental illness, who were abandoned in Erwadi shelter and who later perished in the fire. This irrational ‘treatment’ by the Government, compensating guiltily for it’s own lapses, only gives out the message that if you abandon a relative to an unscrupulous free market in the name of treatment, and that relative perishes due to cruelty or neglect, then you stand to gain. A chronology of Erwadi events.


 

April 2000- Diarrhea deaths at Erwadi. Recommendations made included provisions for a ward at the district hospitals in Ramanathapuram and Madurai; a training programme for doctors and paramedical staff in treatment of mental patients and for NGO’s.

6.8.2001- Death of 25 mentally ill patients at Erwadi who were chained to their beds. After their hutments caught fire, they were burnt alive. 11 women and 14 men died when the fire broke out at 5. 10 a.m. There were 43 persons housed under primitive conditions inside a thatched hut. The police suspected that the fire may have been caused by an oil lamp, which ignited the shed. The alarm raised by some inmates was ignored by the people and asylum owners, who mistook it to be their usual cries. The hostel owners charged that some ‘mysterious persons’ had set fire to the thatched building. The police took into custody four members of the family, which ran the institution.

Immediately, chief minister Jayalalitha announced a payment of Rs. 50,000/- each for the families of the deceased, Rs. 15,000/- for those who suffered serious burns and Rs. 6000/- for those who had simple burns. The Ramanathapuram DC Vijaykumar announced financial assistance of Rs. 10,000/- to the relatives of the deceased. The district administration and local MLA appealed to the State Government to regulate the private trade.

According to an earlier investigation, the conditions in the majority of the asylums were deplorable. No proper rehabilitation was offered. Mostly untrained attendants were employed to take custody and the "treatment" always included physical torture. The officials claimed that the practice by private asylum owners receives political and upper class patronage. The TOI reported on 8th August that earlier the DMK government had ordered a thorough probe into the running of the asylum and also arranged a transfer of psychiatric patients to the government hospitals for free treatment.

A five member team comprising of psychiatrists and social workers from the Institute of Mental Health, Chennai, visited 17 institutions for the mentally ill at Erwadi to evaluate the conditions there and an "open" offer was made to shift them to medical facilities. It was suggested to shift them to the Institute of Mental Health in Chennai or Madurai. Immediately after the visit, a psychiatrist was posted at the Erwadi PHC.

The team made a proposal to the center that it start a district mental health program at Ramanathapuram district with an outlay of 1 crore. The program would concentrate on training medical and non-medical officers, mental health care delivery systems (starting taluka level satellite clinics) and awareness building measures.

On the 7th, the toll of death increased to 27 as two more women succumbed to injuries. 2 information cells at Erwadi and Ramanathapuram were opened for the benefit of relatives and parents of the deceased.

On the 7th, the NHRC issued a notice to the T. N. chief secretary and asked for a report on the accident and the steps planned by the government. The commission asked for a reply within one week. The Central Council for Health & Family Welfare, in a meeting, discussed that mental health would be one of the five core areas of investment in the 10th five year plan, wherein the MHA would be implemented in the deviant States and hospitals modernised. The budget outlay was reportedly 155 crores (11-8-01, The Hindu). On the same day, the Hindu also reported that the Center was "toying" with the idea of exempting custom duties for certain psychiatric drugs.

A 5 judge bench of Supreme Court issued notice to the state of Tamil Nadu and other authorities concerned to submit a "factual report" with regard to the incident. This bench included Dr. A. S. Anand, K. T. Thomas, R. C. Lahoti, N. Santosh Hegde and S. N. Variava. They "raised important questions concerning the human rights of a mental asylum".

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In a LS meeting, Vaiko (MDMK leader) observed that despite the mental health authority, the state government had failed to implement guidelines and terrible conditions prevailed. P. C. Thomas (Kerala Congress M) demanded that a central fact finding committee be set up for the state.

District administration drew up a contingency plan to streamline the private asylums at Erwadi. The Government imposed a ban on keeping the inmates of these homes in fetters at Erwadi. The Central Mental Health Authority also cited guidelines against cruelty. Nearly every newspaper report was strewn with mention of the Mental Health Act, the Lunacy Act, news from Mental Health Authorities, Human Rights Commission, SC Judgements and even the UN Principles for the protection of persons with mental illness.

District administration recommended that all private asylums at Erwadi be closed. Patients (about 1000) were ordered to be shifted to special wards in district government hospitals. Orders were issued not to admit people in these asylums and to close them. By the 10th of August, patients brought in by relatives were chased away. The dargah management was directed to provide infrastructural facilities to visiting pilgrims under the supervision of revenue officers and police. The management offered co-operation in the matter of streamlining facilities.

Soon after, the Union Health Ministry decided to map out all the ‘faith healing’ centers frequented by psychiatric patients. Health Minister Dr. C. P. Thakur decided to convene a meeting of state health secretaries and district commissioners to work out the modalities for an effective implementation of guidelines issued recently for the maintenance of minimum standards in mental health set ups.

The moment a family reached Erwadi with a mentally ill patient, a swarm of brokers used to accost them offering the "best" treatment at nominal cost, ranging between Rs. 1000-2000 per month. People having no or very little idea about mental

 

health were running 16 mental asylums. The brokers were reported to be the "dregs" of society, constituting "hard-core" alcoholics, womanizers and marijuana addicts (8-8-2001, TOI). Only 1/3 of the fee recovered from a patient was reportedly spent. They were kept in deep misery with food very often inedible. Sometimes food was adulterated deliberately to get more money from the patient’s relatives under ‘special treatment’. Women were also sexually molested at these asylums.

Reports of very similar situations where patients are kept chained in centers of faith healing have been reported from Patiala, Bombay, Tamil Nadu and Hyderabad. In an open publicity drive, some state mental hospitals presented glowing pictures of their functioning in the newspapers! One report in Pune Times (8-8-01) read ‘No chains in Asia’s largest mental hospital’!!

The SC has since constituted a committee to enquire into the implementation of the MHA and SC orders in all the States.

Will yet another Erwadi happen? A 155 Crore question!!

From the editorial desk

This issue of ‘aaina’ would not have been possible without help from Seema Kakade, Lalita Joshi, and Deepra Dandekar of the Center for Advocacy in Mental Health. Marion Jhunja produced the illustrations for aaina at short notice. Various papers, reports, correspondence, etc. have been shared by individuals and organisations with the Center and with aaina. We thank every contributor for making aaina newsy. This issue carries 30% more content than the last 2 issues for that reason.

We had not planned this issue to be on institutions. It just happened that way. However, we do want to bring out theme issues on ‘Psychiatric Disability’ (No, still not enough materials …!!) and ‘Money matters in Mental Health’.

Why the latter topic? We have been wondering about - How much it costs to stay in a hospital for treatment of an acute psychiatric crisis? What is the cost of medication for a month to families and users? Therapy…?? Etc. etc. These are vital questions from a consumer point of view.

So do continue to write in, on these issues, or other …

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Erwadi Holocaust - An investigation

 

People’s Watch- Tamil Nadu

 

Had the National Human Rights Commission completed its hearing on a complaint sent on 13th September 2000 by Mr. Henri Tiphagne, Executive Director of People’s Watch – Tamilnadu, which has been numbered as case No. 652/22/2000-2001 FC, the inhuman holocaust of 27 most vulnerable and helpless persons would not have happened at Badhusa mental health home run by Mr. Mohaideen Basha at Erwadi. This is the conviction of the fact finding team of People’s Watch – Tamilnadu consisting of Ms. Andal, Ms. R. Thilagam, Prof. Xavier Arockiasamy, Mr. Paneer Selvam, Ms. Lalitha, Mr. Pandian, Prof. Rajaram, Mr. M. Feroz Khan -which visited the fire-devastated home and other mental health homes at Erwadi.

The original complaint with the NHRC was related to one Mr. Murugan who was kept in illegal custody as a mentally disordered person in new LIMRAS, a mental asylum. This was done at Erwadi at the instigation of Mr. Kalaivanan, IAS, who was then the Director of Rehabilitation and Physically handicapped in the Government of Tamilnadu, for falling in love with his daughter. Responding to the complaint lodged by PW-TN, Mr. Venugopal, IAS (Retd), the Special Rapporteur of NHRC, did make a field visit in October 2000 and visited the asylum in which Murugan was detained. During his visit, we handed over to Mr. Venugopal a report on the conditions of mental health homes at Erwadi which was prepared by the PW-TN study team immediately after the outbreak of epidemic in which nearly 8 persons died. A video cassette relating the pathetic conditions of the asylums was also presented to him. Around the same time on October 3rd, 2000, NHRC served a notice to the Chief Secretary on the Murugan case. Nine months later, the Director of PW-TN addressed a letter to the honorable Commission seeking current position of the same case. If the case had been taken on priority basis and if NHRC had effectively conducted the proper hearing, things could have improved at Erwadi and this poignant tragedy could have been averted.

Mental health homes run by private parties have nothing to do with the Erwadi Dargah. Making use of the throng of people with mental disorders frequenting the traditional pilgrimage cum healing centre, these private parties have been exploiting people for the last ten years. All inmates are lodged in temporary sheds made of coconut fronds. The sheds are so overcrowded that there is no space to

 

move around. Moreover the inmates are either chained down or chained to a companion. The places look like cattle sheds. Contrary to human rights norms and standards, the mentally disabled people are lodged in such a pathetic condition. Much worse, even some persons thought to be troublesome at home, have been admitted to these homes and chained along with others. Thus, these homes are not only used for housing the mentally sick but also for detaining other persons with the connivance of the proprietor of the homes, as happened in the case of Murugan.

Not only hygienic conditions in these homes are bad, but also there is no proper medical attention. A person attacked by jaundice was just lying along with others in a home called New LIMRAS run by one Mr. Paneer Selvam. In the same home, a youngster allegedly having some sex abnormality is made to stand all the time by chaining his hands to a hanging chain near the lavatory, instead of being taken to a relevant medical personnel. Such is the blatant violations of human rights of these mute victims of mental disorders.

Of late, after the constitution of a Committee to oversee the running of these homes appointed by the district administration, it appears that there had been occasional interactions between the proprietors of the homes and the local government officials. Neither could the team get hold of any written documents in this regard nor could we see any palpable change in the situation of mental patients, since the first field study conducted by the PW-TN team in May 2000.

Some of the inmates have been brought over here after prolonged treatments in government mental hospitals elsewhere. In a few cases, persons getting back to normalcy have been detained in these homes under some pretext or other to carry on odd jobs free of charge in these homes.

The present pathetic incident also clearly indicated the total failure of the District administration in not responding to the systematic exploitation of the mentally challenged patients over a period of ten years by unqualified and avaricious persons.

There is overwhelming reaction both from the public and the trustees and committee members of Dargah that the private so-called mental health homes should be immediately closed down; because of their exploitative and anti-social character.

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Strangely, no one was talking about proper, scientific medical treatment of the innumerable patients. The Dargah people, however, have expressed the willingness that if the Government were to establish a mental health facility in this area, they would extend support and help.

In the light of these findings by the team, the following recommendations were made to the appropriate authorities by PW-TN.

1. There should not be any second thought about closing down the private mental asylums but then before the phasing out procedure is launched, a team of mental health professionals should be requisitioned to assess the health status of each and every individual lodged in these homes and then only they should either be handed over to their kith and kin or to any other legally sanctioned mental health centers run by government or non governmental agency for proper rehabilitation.

2. (a) In view of the traditional belief that mental disorders get cured in Erwadi Dargah, the establishment of a government mental health centre is recommended, with a task of not only treatment but also to carry on mental health education in this place.

(b) On this occasion, it would be more appropriate to initiate the above mentioned pro-active measure in other traditional religious healing centers as well.

3. Wherever such mental health centers are established, monitoring committees consisting of members of the respective religious organizations, reputed NGOs and Government officials should be appointed and given free hand to implement the various norms and standards recommended by the appropriate legal authorities.

Source: Press release and Study by People’s Watch, Tamil Nadu.

Mr. Henri Tiphagne, Director, PW-TN and the other activists may be contacted at henri@pronet.net.in

 

Pax-Beware

"…jolting electric ‘zaps’ that coursed through our bodies, dizziness, lightheadedness, vertigo, in-coordination, gait disturbance, sweating, extreme nausea, vomiting, high fever, excruciating abdominal pains, anorexia, diarrhea, agitation, tremulousness, irritability, aggression bordering on violence, sleep disturbances and nightmares, loss of memory and confusion, difficulties in concentrating, lethargy, fatigue and many other problems ..."

In December 1992, an anti-depressant in the same class as Zoloft and Prozac (Serotonin Selection Reuptake Inhibitors) was approved for marketing in the United States for conditions of depression, obsessive-compulsive disorder, panic disorder and ‘social anxiety disorder’. It caused some users to experience serious and unexpected withdrawal reactions about which the manufacturer Glaxo Smithklein Corporation (formerly known as Glaxo Smithklein Beecham) failed to warn due to the fear of loosing its market among other anti-depressants. GSK has known for years about the distinct characteristics of Paxil, which make it prone to cause withdrawal reactions when discontinued and in fact causes severe physical and psychological dependence. However this information was not shared with the doctors or the users, making this case comparable to the Tobacco scam.

On August 24 2001, 35 people who suffered from severe withdrawal filed the first class action complaint of its kind in California Superior Court, LA County, against GSK. The complaint charges include fraud and deceit, negligence, strict liability, breach of warranty and implied warranty. The lawsuit was filed by Karen Barth with Mary Schiavo of Baum, Hedlund, Aristei, Guilford & Schiavo in LA and Donald Farber in California: "The scariest part is that there are people who are trying to get off this drug who are experiencing these horrible withdrawal reactions. They think it’s because of something wrong with them, when it’s really the Paxil…and then they take even more and exacerbate the problem!"

We look forward to the outcome of this case. Users forced into addictions to prescription drugs can see litigation as an important way of seeking redress and controlling bad trade practices.

Source: www.baumhedlundlaw.com

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Be a good patient, now

bapu archives

Excerpts of an interview with Malati Ranade (1980)

   
     

A well-behaved patient is one who sits quietly in one place for hours together, one who accepts cold tasteless food without any complaint or a meagre cup of cold tea without a murmur of protest, one who is completely docile and dumb, a person who accepts being herded like cattle into halls and from halls to wards, a person who accepts dirty soiled mattresses and stinking sheets and does not complain about disturbed sleep. Such patients are considered good patients by the staff, people without a spark of life, who it is very easy to keep in ‘safe custody’!


Malati Ranade, in one of her interviews to Sree Weekly (September, 27, 1980) said that a majority of patients who are on the path of improving never recover fully because of lack of affectionate human contact and inhuman living conditions.

  • There was only one tap for the purpose of taking baths as well as drinking water

  • Walls were red with dead bedbugs and most patients couldn’t get any sleep at night

  • Every resident was given a bath twice a week. 10-12 patients were shoved into one bathroom, in the nude. The attendant first poured soap water and then threw a few mugs of water to wash off the soap. Towels were not adequate, and seldom the patient got clean clothes to wear.

  • No wonder, the patients were found to be suffering from white lice on their bodies.

  • The patients never got food on time, because sufficient numbers of plates were never served

  • Preparing tea: when 40 kgs. of Sugar was required only 9 kgs. would be used, and instead of 80 litres, only 40 litres milk would be used.

  • The ‘Ayahs’ were called ‘Rakshashinis’ (she-demons) by the residents, and the psychiatrists as ‘shock-doctors’, as they did not provide any treatment other than electric shock (E.C.T.)

  • Once, a 25-year old lad died within 9 months of admission. During this period he did not get any treatment other than 17 electric shocks. Records did not mention any severe disease as a cause for his death. Five months after his admission, he was transferred to

 

the ward for ‘weak patients’. Later one day, he was recorded as ‘serious’, and the next day the register recorded his expiry. There was no discussion about this death. (In a recent talk with Malati Ranade, she mentioned that authorities held what was notoriously called ‘Mortality Meetings’ to discuss these deaths.)

  • Medical staff was under employed, as very few patients required ‘medical treatment.’ These doctors had to spend most of their time in playing chess! (Nowadays they have thriving private practice).

  • In 1980, there were 1100 employees at the hospital to look after 2700 patients in Yerawada. Still no one arranged recreational activities or rehabilitation.

  • Crores of rupees were spent on the hospital, however only one third of the amount was spent directly on the residents. Even in the monies spent, quality of food, clothing, etc. was questionable.

  • None of the state authorities bothered to follow the provisions under Indian Lunacy Act. The Visitors’ Committee was supposed to visit the hospital and monitor conditions. However, during her long tenure, neither did this committee ever take a single round in the whole hospital, nor did it find a single objectionable instance, although misappropriation, apathy and cruelty towards the residents were an everyday practice.

Source: Malati Ranade Papers, Bapu Archives, Pune. We are very grateful to Late Malatitai Ranade for donating several of her papers and documents to our Archives. Sourced by Seema Kakade.

aaina

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www.camhindia.org

 

For your information


For the wandering mentally ill who are treated cruelly, who languish in lock-ups and jails like criminals, for the many workmen who get mercilessly thrown out of their jobs on grounds of mental illness, for the women who are deserted or divorced on grounds on ‘insanity’, for those illegally confined within various types of institutions and those who cannot afford legal services because of their confinement within institutions, this appears to be a useful Service Authority.


The National Legal Services Authority, on the occasion of "Legal Services Day" (9th November, 2001) reiterated its resolve to ensure "Equal Justice to All". According to the Preamble of the Legal Services Authorities Act, 1987, the Act is to constitute Legal Services Authorities to provide free and competent legal services to the Weaker Sections of the Society to ensure that opportunities for securing justice are not denied to any citizen by reason of economic or other disabilities and to organize Lok Adalats to secure that the operation of the legal system promotes justice on a basis of equal opportunity.

Who is eligible to get free legal aid under the Authority:

Any person who is either a member of a SC / ST; or a victim of trafficking in human beings or ‘begar’ as referred to in Article 23 of the Constitution of India; or a woman or a child; or a person with disability as defined in clause (i) of Section 2 of the Persons with Disabilities Act 1995; or a victim of mass disaster, ethnic violence, caste atrocity, flood, drought, earthquake, or industrial disaster; or an industrial workman; or in custody, including that of a protective home, juvenile home, psychiatric hospital, psychiatric nursing home; or having annual income less than Rs 9000/- or such other higher amount, as prescribed by the State Government if the case is before a court other than the supreme court, and less than Rs 18000/- or such other higher amount, as prescribed by the Central Government if the case is before the supreme court.

Eligible persons may contact the following for obtaining free legal services:

 
  • Secretary, SC Legal Services Committee
  • Secretary, High Court Legal Services Committee

  • Member-Secretary of the State Legal Services

  • Secretary of the District Legal Services

  • Taluka Legal Services Committee

Legal Aid means and includes advocates to eligible persons; court fee on behalf of the eligible persons; expenses regarding typing and preparation of petitions and documents; expenses for summoning of the witnesses on behalf of the eligible persons; and other expenses incidental to litigation. All the expenses for litigation are borne by the Legal Services Authorities. The aided person is not called upon to bear any expenditure whatsoever.

For more information log on to http://supremecourtofindia.nic.in

(Resources: The Legal Services Authorities Act, 1987)

Contact: S.M. Chopra, Member-Secretary, National Legal Services Authority, 12/11 Jam Nagar House, New Delhi- 110 001 (T)- 011-3382121, 3385321 Email: nalsa@bol.net.in

dear aaina

Thank you very much for sending us the second issue of ‘aaina’. It is very evident, a great amount of quality team work has gone into the making of the newsletter. It is very impressive and informative with a wide range of topics. "Aaina" is a shot in the arm of mental health advocacy in India. I hope this will become a permanent publication after the first three trial issues. Please accept and convey to other members of your team, our hearty congratulations and best wishes.

Mr. B. Raju (scarf@vsnl.com)
Chief Administrative Officer
Schizophrenia Research Foundation (India)
Plot R/7A, North Main Road,
Anna Nagar (West Extn)
Chennai 600 101

 

Your letters and responses will find a place for our readers in this column. We may not be able to publish all letters nor letters in their entirety.

www.camhindia.org

11

aaina

     

On Non-Compliance

What is the letter of the law with respect to treatment rights in residential facilities? Justice S Mohan on 17th August 1993 disposed off Writ Petition (Cri) No. 237 of 1989 (Sheela Barse Vs Union of India & Anr) in the Supreme Court of India, by directing the Chief Secretary of every State to ensure that its order for West Bengal is properly implemented in every other state as well. The MHA 1987 was notified on 22.5.1987. The Central and State Mental Health Authority Rules 1990 were notified on 29.12.1990. Vide letter of 10.11.1981, the Central Government also requested all State Governments and Union Territories to establish the State Mental Health Authority in compliance with the MHA. Yet, till today, many states openly ignore the statutes, the administrative orders as well as the SC orders. If the situation of non-compliance to statutory regulation prevails, Erwadis will continue to happen. Relevant excerpts from the SC Judgement…

"The improvement schemes for mental hospitals are outlined as follows:

"It is suggested that managing bodies should be set up for all hospitals … Senior officers from the department of health, welfare, prisons, police along with a professor of psychiatry from a teaching hospital could be members. The medical superintendent of each hospital could function as member secretary of the committee.

"These committees will be under a duty to formulate schemes for improving both the living and therapeutic conditions in mental hospitals. The aim of improvement schemes however should not just be to remove the deficiencies of the old hospitals but to create and to transform these old custodial institutions into active treatment centers supportive of care in the community.

"Legal Aid: A mentally ill person shall have the right to legal representation and legal aid in involuntary commitment proceedings before a magistrate.

"Admission to mental hospitals: A person who believes he needs in-patient treatment in a mental hospital for his mental illness makes request for voluntary admission to the medical superintendent of a mental hospital. …The medical superintendent subsequent to necessary inquiries may grant admission. A voluntarily admitted patient shall be discharged within 24 hours of his or her making request for discharge.

 

"Living and therapeutic environment of mental hospitals: The state shall ensure that all the mental hospitals in the state should provide a clean and healthy environment, effective care and treatment to mentally ill persons. In order to enable performance of this function all mental hospitals shall be allocated commensurate resources.

"Emergency medical aid and death in jail or mental hospital: The medical superintendent or the jail superintendent (till the mentally ill are in jails) shall be responsible for the medical needs of the inmates of the medical hospital and jail respectively. The above stated officers shall ensure that their institutions are equipped with life saving medicines and immediate medical attention is given to any inmate who needs it. The state government shall respond at once to medical superintendent’s request for life saving drugs or any other emergency medical help. If a mentally ill person in jail or mental hospital dies in unusual circumstances a post mortem shall be carried out."

The judgement exhaustively covers restoring the liberty and rights of persons with psychiatric disability illegally confined in jails and the wandering ill. It acknowledges the treatment deprivatory consequences of being committed to jails, the delay in receiving specialist help, the lack of specialized human resources and supervised care. The judgement also notes the lack of variety of treatment facilities and excessive deprivation of liberty in the jails.

The full text of the judgement and various other related papers and documents were shared with us by Ms Sheela Barse.

aaina