a mental health advocacy newsletter
Vol. 8 No.1 & 2, March & July 2008

In the last few months, two of our user friends “disappeared”. Upon contacting the families, we were warned not to try to establish contact with them. We were refused information on where they were institutionalized. One friend was isolated and picked up at 5 AM in the morning and forcibly taken to a plush tri-star facility in Bangalore. The physical comforts she got there did not compensate for the lock up and other forced treatments she received. She came away terrified and vivid with the trauma of institutionalisation. Both the private institutions where they were taken, created nearly impossible barriers for us in talking to them over the phone. We were told that the families have prohibited us from meeting them or otherwise getting in touch. Recently, another user whispered to us about how a private institution “kidnaps” patients in vans. He was not aware that there is a law (Mental Health Act) which allows involuntary admissions, without prescribing what is the method for doing this, leaving people to their own imagination on how to ‘catch people’ and institutionalize them. Another user gave us a full story of her abduction and being kept fully drugged in a private institution [excerpted and presented in Puja Modi’s write up] for over a month. It took very determined efforts on her part to get out of there.

In this time, we also heard of Faisal Khan, Aamir’s Khan’s brother, whose forced treatment got press coverage and some encouraging judicial pronouncements, discussed by Amita Dhanda, in this issue. Kevin Cremin also published his report (excerpted here). Among various other dimensions of mental health service delivery in this comprehensive report, the topic of force brought up significant data. Some service providers, very concerned about choice, started reporting about the serious victimization of women diagnosed with a mental illness within the civil and family courts, also covered here.

The UN Convention on the Rights of Persons with Disabilities [CRPD] was ratified by India and other countries. It comes into force in early May. The CRPD work has really foregrounded user and survivor concerns about forced treatments, involuntary admissions, and the future role of mental hospitals, if any, in the process of recovery. While looking at other more loving alternatives to address crises, we stumbled upon the Soteria project, a well known peer support project. Peter Lehmann and his friends wrote about their project, for this issue. Gitika Talwar too has reviewed a book for this issue, which provides a humane perspective about choice in emergency situations. Finally, we very much look forward to the work of Gábor Gombos, mental health activist from Hungary, to bring his skills and expertise, as well as hope, for the invisible and silent consumers of mental health services, living in India. He shares his life and work with us in this issue.

Contents
Reflections: Why are institutions inhumane?
Advocacy News: Adjudicating Illness and Capacity
Involuntary Rehabilitation: Evidence of the Use of Force by Rehabilitation Centres in India
Useful Resources: Search your soul: There is courage within
Advocacy News: Mental Health Law: On Road to Freedom
Advance Directives: An Effort to Oust Force
Advocacy News: Forcing mentally ill women into giving their child in adoption
Speaking Our Minds : Freedom makes a lot of difference… for the better
Treated but not healed - Excerpts on Forced Treatment
International Ashoka Fellows Exchange Program
…that is why they sent her there
Images
Paryayi
Soteria: An Alternative Mental Health Reform Movement

Edited by: Bhargavi Davar
Editorial Assistance:Puja Modi

Contact Address:
Center for Advocacy in Mental Health
Plot no.9, Survey no.50/4,
Kapil Villa,
Satyanand Hospital Lane,
Opposite Konark Pooram,
Kondhwa Khurd,
Pune- 411048
Telephone- 26837644 / 47
Email- wamhc@dataone.in

 

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Aaina is a mental health advocacy newsletter.

Aaina is an opinion-making and opinion-leading newsletter, with a consistent message of user empowerment, good practice, policy, legal and social reform in the mental health care sector in India.

Aaina covers issues in community mental health, the role of NGOs in mental health, self-help and healing, the use of non-medical alternatives in mental health, human rights issues in mental health, institutional reform, ethical dilemmas, policy discussions, and the mental health needs of special groups (young people, women, the poor, sexual minorities, persons with a disability, etc.).

Aaina covers themes related to disability caused by psychiatric drug use, and long term institutionalization. It has a great interest in how much money pharma companies are making by pushing hazardous drugs onto poorly informed communities.

Aaina provides a forum for users to express their problems and dialogues with the mental health service system, and their demands for change. It also addresses issues of social living for persons with a psychiatric disability, stigma, discrimination and deprivation of the right to life and liberty, especially of the poor and the homeless.

If you wish to make a donation to aaina, please make a DD or a cheque in favour of “Bapu Trust for Research on Mind & Discourse, Pune” and post it to our mailing address.

   

 

Reflections
Why are institutions inhumane?
 

Let me first introduce myself to the readers of Aaina. I am a survivor of psychiatry who was hospitalized in psychiatric units four times between 1977 and 1991. My mother was also a patient labeled with a diagnosis of a severe mental illness. Unfortunately she did not survive, she died when she was a subject in a clinical drug trial without her consent. She died from a heart failure that might have been a side effect of the medication she was given.

I changed my career in theoretical physics into human rights advocacy after my mother’s death. Eleven of us, all users or former users of institution based, often coercive mental health services founded an organisation to help each other and to make our voice heard. In the beginning much of our activities were driven by anger: We were angry with a system of no choice, of force, of disrespect, of invalidation. We were seen by others as incapable, as defects of society, failed human beings. A predictable route for us was there: after years of being revolving door patients going in and coming out from psychiatric units we could easily end up in long term institutions. From where, we knew that very well, there is no way back.


 

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We did not want this to happen to us. We did not want this to happen to anyone. Anger gradually gave place to sophistication. We learned how to advocate for ourselves, how to overcome shame and stigma, how to be proud of our madness, how to change the bad for the good. We started to change ourselves and started to learn about lives of our peers and also tried to understand the system, which is centred around institutions. We had to understand why institutions are bad if we wanted to demand for something better.

When I am writing these lines I am looking forward to spending time and working in India. I am willing to share my experiences with my friends, peers in that huge and for me unknown country in this article and later also in person. I want to do this not because I think I can teach you. I know that I know nothing of your country, of your institutions, of your everyday difficulties, of your sorrows and of your happiness. But I strongly believe in mutual learning. I want to learn from you and I want you to have my experiences available to you.

What is an institution?

When talking about mental institutions we often think of large, old, Victorian style buildings in a bad state of repair, warehousing thousands of inpatients. Even human rights literature criticizes the physical conditions, overcrowdedness, lack of hygiene and the like. In the past 15 years I visited hundreds of institutions in a number of European countries and in North America. In poor countries and in rich countries. I had the privilege to work in post war Kosovo, where I had to witness how foreign funding was used to refurbish an old institution. They made a four star hotel looking building from a ruined down block of houses. The renovated institution had marble stairs, luxury bathrooms with expensive Italian tiles. And then I became angry again. The bathrooms were closed all the time I visited the place. I could hardly see any residents outside their bedrooms where they spent their time sleeping, sedated by strong medication, or purposelessly wandering in the corridors. They had to wake up and get up at 6 o’clock in the morning, they were given their meals when it was scheduled, not when they were hungry. They had no opportunity to choose what they wanted to do in their spare time. They had no say in whom they wanted to live with. They had to follow house rules on which they had no influence at all. They were treated as objects in a factory. The luxury institution was certainly not a home but a service to keep residents alive.

I saw institutions in rich Finland. Every unit had its seclusion room with special bed and sophisticated restraint tools. In the States I visited a so called group home where residents were not allowed to talk to me directly. The social worker spoke on their behalf. The house rules were more rigid than in some of the large institutions I had seen before. Literally every minute of the residents was controlled by the social worker on duty and users had to ask for permit for virtually everything.

Institution, in my understanding, is about power. Goffman published his famous book on total institutions decades ago. At a time when deinstitutionalisation had just started. Mental health professionals often say, and many of them genuinely believe that those total mental institutions belong to the past. There are several problems with this approach. Firstly, deinstitution-alsation has happened only in the smaller part of the world. In poorer countries institutions are just being built nowadays. Like in India, where the Supreme Court obligated states to build and run institutions for people with mental health problems. But India is not an exception. In my country, Hungary, which joined the European Union, one of the most propsperous regions of the world, proud of their sensitivity to human rights for all, the government decided to build new institutions, each housing up to hundred people.

Another problem with deinstitution-alsiation is that institutions form their own infrastructure. In an economy driven age like ours existing infrastructure needs to be used. And institutions can hardly be used for any other purpose. Thus instead of deinstitution-alisation even in ‘progressive countries’ one can see transinstitutionalisation. Former mental institutions are being transformed into elderly houses. And too often those elderly people living in these elderly ’homes’ are the very same people who used to live in the very same buildings as “chronically mentally ill”.

The third problem is that even small scale residential facilities can be total institutions. The typical attitude towards people with mental health problems is paternalism. Even “best people” act “in the best interest” of the person with psychiatric labels. The presumption is that those people, like myself and some of my readers, are incapable of understanding what is good for us. Consequently others need to decide what shall happen to us. Where we shall live, what we shall do in the 24 hours of the day, 7 days a week, 52 weeks a year...till we die. Our right to make our own choices are taken away “in our best interest”. The power of the managment of the institution and also of the staff is unlimited. Residents of institutions, of large

 

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or small ones, are deprived of the power over their own lives. One of the non-negotiable rights in modern democracies is liberties. If a person has no power over his/her own life, he loses his/her liberties. His/her humanity is taken away from him/her.

Do evil people run institutions?

One cannot deny that total institutions attract antisocial people. It is so easy to abuse those whose rights, whose power have been denied. Physical and sexual abuses in any kind of institutions is wide-spread. But it would be unfair to say that only bad people work in institutions. I met and spoke to hundreds of nurses, social workers, managers working in mental institutions. Many of them are committed professionals who want to help their users. When I meet these professionals I always feel frustrated. How to explain them that what they do from their heart, for very low wages and even lower societal prestige causes more harm than do good? I found that facilitating unconventional interactions between residents and staff can be helpful. When staff meet residents only as vulnerable and disabled needy beings they cannot discover the capabilities and strengths of their users.

I shall never forget a head nurse in a long term institution in Hungary. Back in 1995 I visited the place. In a separate building there were 19 caged beds, in each of them at least one naked resident. These caged beds were their “homes”, they spent all their time in those cages. When we asked the head nurse why those people were kept in cages, she answered that they were so disabled that cages were the only way to protect them. Years later caged beds were prohibited and I returned the place. All the former cage bed “users” (what a bizarre term, isn’t it?) were doing well without the cages. It is true that the work responsibilities and schedule had to be restructured but it went surprisingly well. Then the head nurse came to me. With tears in her eyes she told me she could not understand how she had been so stupid that she could not have believed that those people could live without cages. And that human caring and share of power is a much better protection than any mechanical restraint.

This head nurse is just one of the many victims who have never seen the capabilities of their users who were trained in a way that people with “severe mental illnesses” are hopless cases, they can’t grow, they can’t recover, they can’t exercise power over their lives.

This false presumption, in conjunction with fear from madness and mad people, maintain total institutions.

What can be done?

I don’t belive in universally applicable recipes. In Hungary the user/survivor umbrella have adopted a multi-track approach. While we advocate for deinstitutionalisation at every possible fora, local and national, we endorse and run alternative services. We also maintain close contacts with peers who live in institutions. We also offer training for staff to challenge their stereotypes. We help set up residents’ councils in institutions and if needed mediate between them and the institution management. Empowerment is crucial, if residents regain power over their lives and are allowed to decide on what and how they want to do then we make an important step forward. We are often criticized that through these activities we endorse institutions. I disagree with that criticism. We must not ignore that ten thousands of people live in institutions in my country and in the foreseeable future this is unlikely to change. We, the privileged ones who, due to our luck, to our social support networks, friends or families could avoid life-long institutionalisation have moral obligation not to forget about those who live in institutions.

I live in a big house with 150 flats. This building could easily be an institution. And still it is my home. It can be my home because I do have my privacy, there is no total power controlling my life. Naturally residents of the house need to accommodate each other in a reasonable manner, but besides that I can decide what life I want to run and how. Also the rules to be followed by all the residents are democratically decided by the assembly of the house. Residents’ councils if properly empowered, trained and respected by management and staff can play a similar role. This will not resolve all the difficulties of institutional life but can result in important improvement of lives with dignity.

Together with other disability groups we are advocating for a moratorium to new admissions in long term institutions. However, we need to be aware that a meaningful deinstitutionalisation will happen only if a range of alternative, non-coercive services are available for people in need. Neediness should not negate strengths and choice may enhance recovery. Instead of total institutions that deprive persons of the basic rights we want services that build on the capabilities and strengths of the persons and that enable growth.

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Advocacy News
Adjudicating Illness and Capacity
Notes from a Custody Trial
Vasudha Nagaraj1
 

The legal terrain is replete with struggles of women, charged with mental illness, fighting to retain their statuses of being a wife, a mother or as a holder of property. Our knowledge of women’s engagements with the law is mostly sourced from a reading of legal judgements of appellate courts. There are very few accounts of the everyday details of the courtroom trial in which a woman has to bring together critical resources to defend herself and claim her rights. Through this narration I wish to problematise the codes in which the law promises its ‘protection’ to the woman. Even as a woman appeals to the law to declare her as ‘capable’, she has to consent to the protocols of the pleadings and evidence demanded by legal practice. Such consent implies an ability to produce witnesses and documents to corroborate her account, a courtroom performance that is coherent and systematic, a readiness to subject oneself to medical examinations to prove her wellness and doggedness in the face of an ambivalent rigidity demanded by legal procedure. What follows is an account of a particular case of a woman’s struggle, using the legal forum of Guardian’s and Ward’s Act, to state to her marital community that her illness did not incapacitate her to be a mother to her six year old child. I recount here as her lawyer the difficult decisions and strategies that went into arguing this petition.

Gauri, the petitioner, comes from a middle class teaching family. From the inception of her marital life she felt what she terms ‘ill’. During her illness she sensed a foreign body within her and heard voices. Her husband, angry with her condition, returned her to her natal home from where she was taken to a psychiatrist. The psychiatrist treated her with medication and told her that her experiences are common for newly married women. Following her treatment, Gauri returned to her marital home. Despite her recovery, her husband’s family was unhappy with her, suspicious that she was ‘mad’ and continuously made remarks that they had been cheated by her parents. Her school and college certificates were examined and she was also demanded to go through an IQ test. Gauri suffered their taunts and sometimes confided in her parents who consoled her by telling her that ‘things will settle down in the future.’ Within a year of marriage, Gauri gave birth to a baby girl and the harassment took a different turn after the baby arrived. Gauri was told that she was not attentive to the child’s needs as she was often sleepy and dreamy; and that she was ill-treating the child. The child was soon separated from her on the ground that its welfare was at risk. After a series of fights over many years, Gauri was asked to go away but leave the child behind. Unable to face this harassment, Gauri along with her daughter, ran away to her natal home. Soon after, the husband and his family made many attempts to recover the child from Gauri’s custody. Fearing that she would be separated from her child indefinitely, Gauri moved the family court for a protection order and thus began the legal proceedings for child custody.

Pleadings

Gauri’s husband was livid with rage that she had not only taken away his child but also appealed to the court seeking protection. He pleaded, in his counter, that Gauri’s petition was false and full of lies, and that she was continuously sick and prone to hearing voices. He also added that she was not social, never fulfilled her duties as a wife and daughter-in-law, and was always drowsy and inactive. He reiterated that all along it was he who had taken full responsibility for the upbringing of the child. He filed two dozen prescriptions issued by three psychiatrists and records of Gauri’s visits to the healing centres. In other words, he argued that Gauri was ill and thereby incapable.

As Gauri’s lawyer, I had spent many hours with her, and had discussed her case in detail. Yet, the allegations came as a shock. Indeed, the pleadings were silent about Gauri’s illness except at the initial phase. When I consulted Gauri as to why she had not revealed the extent of her illness to me, she said that she did not think it to be so serious. Her parents confirmed that though Gauri was under medical

 
1Vasudha works in the Law and Critical Legal Theory Initiative at Anveshi. She is currently working on a project titled ‘Feminist Politics, Rights Discourse, the Family and Sexuality: Rethinking Women’s Suffering and Agency.’ She is also a practicing lawyer in the Family Courts in Hyderabad defending women in various aspects of marital rights and obligations. Her primary interests are in understanding the structure of the law and its complex relationship with the family. e-mail: vasudhanagaraj13@gmail.com
 

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treatment, she was a capable and hardworking woman. Moreover, Gauri firmly believed that her illness had been precipitated by the harassment she experienced in her marital home. According to Gauri and her parents the issue was not so much the illness as her husband’s uncompromising attitude towards her that led to the present situation.

The trial proceeded along this principal node of tension. While her married life of ten years revolved around the axis of her illness, her pleadings in the court erased the issue altogether. We pleaded for a general cruelty experienced in the marital home rather than foregrounding her illness as an effect of the cruelty that she suffered. At this stage we could not introduce any fresh lines of reasoning except what we had pleaded. By hindsight I see that we could have pleaded and proved that this illness was temporary and made worse by the ill treatment of her marital family. Now we were forced into a difficult situation of fighting on the ground that Gauri was never ill except for the initial phase.

As her lawyer, I was worried about the other complications in the case. First, the child was not too fond of her mother and yearned more for her father. Preference of the child is an important consideration in deciding custody cases. Second, the husband may examine the doctors who issued the prescriptions as witnesses. Third, brief research indicated that the medications in question are often prescribed in cases of severe mental illness. It should be qualified, however, that neither Gauri nor her husband knew the nature of her illness and everyone, referred to her illness as ‘depression;’ a point in our favour. Fourth, I worried that Gauri would have to undergo a medical examination to prove her bonafides to the court.

Gauri attended court regularly and the current psychiatrist scaled down her medication considerably. He said that Gauri was in relatively good health now and that the natal home had given her a sense of security. Asked about her earlier prescriptions of heavy dosage of drugs, he said that the ill treatment in the marital home could have exacerbated her illness. He also hinted at the malpractice of the earlier psychiatrist who could have prescribed these drugs on the basis of information given by her in-laws.

Evidence

Preparing for Gauri’s cross examination was the most difficult part. Her memory of early years – marriage, honeymoon, pregnancy and other events – was very vague. We had to reconstruct every detail with the help of her parents and in the process foreground some facts but hide others. It was important to camouflage the fact that she had discontinued her education several times. We advised her to depose that she had discontinued as she was forced to take up domestic chores to prepare for her marriage. Though it is common for girls to discontinue their education, in Gauri’s case one had to be cautious as such a fact could be read as a result of her illness. Similarly she was asked to make lists of her jewelry and sets of clothes, her chores in the household and relevant dates and places. She was taught to deny all knowledge about consultations with her doctors and the contents of the prescriptions. Here we were really walking on thin ice.

In a cross-examination, crucial counter-evidence is collected when the witness forgets, fumbles and slips on the facts. The purpose of a cross-examination is to intimidate the witness so that she lapses into confusion. I was not sure if Gauri could handle the extreme tension of a cross-examination. Gauri was cross-examined in two sessions of three hours each. She was confronted not only by the prescriptions but also with her diary and every scrap of paper that she had left behind. Apparently, Gauri had forgotten all about these papers in which she made notes on her illness, medications and queries to the doctors. When confronted with these papers for the first time, she was so petrified that she admitted some and denied some. But thankfully, she survived the intense cross examination with minimal damage. Her parents also deposed well in her support.

In his defense the husband examined himself as a witness. In his cross examination we elicited from him that that he pleaded no specific instances of Gauri exhibiting abnormal behavior; that the prescriptions carried no diagnosis, that the medicines could very well be prescribed for general health. He also admitted that he made no efforts to get his wife treated which was crucial evidence in our favour.

The Unexpected Turn

As is common to custody cases, the child was interviewed by the Judge. We did our best to coach the child, but were very unsure. To our pleasant surprise, the child spoke fondly about her mother and preferred to live with her. Apparently, the child had developed a certain intimacy with his mother during the trial period. We filed her progress reports to show that she was attending school regularly and also doing well in her studies.

Following this, the husband declared that he had closed his evidence. This turned into the astonishing conclusion to the trial. He did not examine his parents, friends nor did he

 

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examine the three psychiatrists who had issued the medical prescriptions. The case in other words had abruptly come to an end. Without the evidence of the doctors, the prescriptions carried no evidentiary value. The absence of corroborating evidence for the husband considerably weakened his case. In these circumstances the issue of Gauri’s medical examination did not arise. Not revealing the fact that Gauri was ill and on medication throughout her marriage had worked to her advantage. We argued that the husband had leveled vague, uncorroborated and unsubs-tantiated allegations against Gauri and failed to prove her illness or her incapacity to be a mother.

In the face of the bleak evidence presented by the husband, we expected the Judge to give us a favourable order. But the Judgement was half hearted. The Judge gave Gauri the right to reside with her child only temporarily. Reading between the lines of the judgment, it was clear that the Judge was influenced by the unproved medical prescriptions. Even though there was no remark on her illness or the question of her capacity, the Judge used the husband’s status as the natural guardian to deprive Gauri of the custody.

Questions and Dilemmas

This trial can be analysed in many registers. Here, I wish to raise some questions about the quality of women’s engagement with the law. Gauri was ill at her marital home but recovered considerably when she moved out of that context. Her illness evidently was contextual, temporary and curable. The Supreme Court has held that a mere diagnosis of mental illness is not enough; only the degree of incapacitation is relevant in deciding such cases. Despite such precedents, legal practice often operates by setting up rigid categories of illness or health, especially in cases of mental illness. Gauri’s mere admission that she consulted a psychiatrist in the early years of her marriage cast a shadow on her claim for custody. Her illness, however inadequately proved by the husband, influenced the Judge against her capacity. What was primarily on trial was the belief that a mentally ill woman was ‘mad and incapable’ and a burden and risk to family life. In the trial, pitted against one another were the ‘fragility’ of the child and the ‘unpredictability’ of the mother, both being essentialised unproblematically. Nowhere was there a possibility of arguing that the child staying with the mother can be important for the latter’s health and wellness. It was only the “best interests of the child” that had to be argued and decided while the harassment and illness of the mother was only incidental. The function of the law was clear: except adjudicating rights claims it will not undertake any further responsibility of the wellbeing of its subjects.

Any trial demands intensive preparation and witnesses are generally very stressed about their performance in the witness box. Here, the stress was multi-fold. Gauri was not always well and we worried that the tension would trigger her illness. The trial demanded a high degree of clarity and consistency of performance over an extended period of three years. Gauri partly succeeded because she worked hard, managed her illness, was alert to potential confusions, and displayed a rare courage to fight the confidence of her able-bodied husband. There was always a lurking fear that she could lose the case and be forced to hand over the child to her husband. The legal battle works only as a win-lose formula. Inability to produce the right kind of evidence is read primarily as the untruthfulness and dishonesty of the claim that one is making. What would ‘losing a case’ mean for a woman like Gauri who was already victimised and castigated for her illness? Would not the ‘verdict’ of the legal procedure further damage her sense of self and well-being?

It is important to be aware that in appealing to the law one is consenting to the procedures which often produce enormous anxiety and helplessness. This gets exacerbated because the ‘family’ is viewed as a non-contractual domain and hoarding of evidence in the form of documents and witnesses is often seen as antithetical to the essence of this institution. Further, upon the breakdown of a marriage, women are rarely in hold of the right kind of such resources. Mental illness significantly adds to the existing list of limitations that women face in the courts. Yet a sizeable number of women appeal to the courts seeking justice to the cruelty and injustice that they face in their relationships, partly aware and unaware, of the hardships of this project. Many upon entering the precincts of the court hall either withdraw or ‘compromise’ their cases. A few, however, go through the entire trial. It is in this category of contested cases that crucial case law is produced that attempts to challenge inflexible notions of able and disabled bodies and their respective capacities and incapacities.

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Involuntary Rehabilitation: Evidence of the Use of Force by Rehabilitation Centres in India
 
Kevin M. Cremin
kevin_cremin@hotmail.com
 

As an American India Foundation Service Corps Fellow at the Centre for Advocacy in Mental Health (CAMH), I visited forty-four mental health facilities in Karnataka, Maharashtra, Tamil Nadu, and the Delhi Region. The goal of this study was to determine whether law and public policy inhibit the provision of community-based services in India, and if they do, to recommend ways to overcome or eliminate these barriers. This goal was achieved by analyzing mental health facilities and the laws governing their operations. To understand the functioning of these facilities, I documented the following aspects of their operations: infrastructure; admission/discharge procedures; relationships with governmental authorities; ward access policies; and inpatient/outpatient services. I then examined this data to determine whether there are any legal or public policy barriers that interfere with the provision of community-based mental health services. Insights were drawn, where appropriate, from the Convention on the Rights of Persons with Disabilities and laws regulating mental health services in other countries. This study concludes that there are currently a number of significant barriers to the provision of community-based mental health services in India.

The entire study, including findings, analysis, conclusions, and recommendations, is available on CAMH’s website at http://www.camhindia.org/ghpurc.html.

One subject the study examines is the use of force by rehabilitation centres in India. Both the physical infrastructure and the admissions policies of some rehabilitation centres provide evidence of force or involuntary treatment.

The infrastructure of force is apparent at a significant number of rehabilitation centres. Of the mental health facilities that I visited, twenty-eight are run by nineteen separate rehabilitation centres. Eight of these nineteen rehabilitation centres have at least one facility that is essentially indistinguishable from the residences that surround it. These facilities are generally of the same scale as their neighbors and they do not have any physical characteristics – other than, in some cases, a sign – that mark the building as a mental health facility.

A surprising number of rehabilitation centres, however, have charac-teristics that are associated with involuntary institutions. For example, five facilities are surrounded by fences that are topped with barbed wire. Similarly, seven rehabilitation centres have facilities where locking mechanisms are used to prevent residents from exiting the facility or a portion thereof. I would therefore describe a significant portion of the rehabilitation centres that I visited as locked or closed facilities.

Evidence of the involuntary nature of some rehabilitation centres is also clear from their admission policies. Although the admission procedures at rehabilitation centres varies greatly, one commonality is that, for the overwhelming majority of rehabilitation centres, psychia-trists and the families of applicants play key roles. For fourteen providers, a psychiatrist plays a central role in the referral process. Thirteen providers stated that residents are brought to their facility by family members.

Eleven of the nineteen rehabilitation centres utilize an application form in their admission procedure. The application forms generally ask for information regarding the applicant’s personal and medical history. One interesting variable is who is required to sign the application forms. Only six of the eleven applications include space for the signature of the prospective resident. Of the application forms that are required to be signed by the prospective resident, half of them also include space for the signature of a guardian or family member. All five of the applications that do not include space for the resident’s signature require a family member to sign the application form. Six application forms include space for the signature or endorsement of a psychiatrist.

The description of the admission procedure for one rehabilitation centre highlights how a prospective resident’s family is often placed at the center of the admission procedure: the family contacts the provider by telephone or email; the family visits the campus; the family provides the rehabilitation centre with medical reports if the reports are available; the family meets with staff and the treating psychiatrist to discuss the period of stay and the family’s expectations; and the family fills out the application form. This raises the question of what happens when the family’s interests are contrary to, or not fully aligned with, the prospective resident’s interests. It would

 
 

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seem to be important to, at the very least, have guidelines in place that protect the best interests of the prospective resident.

More generally, the emphasis on the opinion and approval of the prospective resident’s family and psychiatrist raises questions about the voluntariness of treatment. This is an important question for practical as well as legal reasons.

As Helen Killaspy et al. have written in What do Mental Health Rehabilitation Services do and What are they for? A National Survey in England, “[r]ehabilitation psychiatry is practically an ‘evidence free’ zone in modern psychiatry.” It would seem, however, that rehabilitation would be less likely to be successful when it is not voluntary. In particular, it is difficult to reconcile involuntary treatment with the goal of “promoting independence and autonomy.” One provider emphasized that a major factor in its admission decisions is whether the prospective resident is motivated to participate in the rehabilitation programme.

The use of force is highlighted by the practices of the five rehabilitation centres that find some or all of their residents on the street. Two of these five providers described their admission procedures in detail. One stated that staff members sometimes have to use “mild force” to lift the person and put him or her into a vehicle. If the individual is going to be admitted to the rehabilitation centre, a Magistrate is involved in the admission process. If more than one admission has to be processed, the Magistrate will come to the facility to issue reception orders. Otherwise, the facility brings the patient to the Magistrate. It is generally a three-day procedure to produce a person before the Magistrate and receive a reception order. During that time, the “rescued” individual is kept in an isolation room unless he or she is calm.

Another rehabilitation centre that finds residents on the street stated that the person is “caught” and put in a jeep. Then the person is brought to the rehabilitation centre and cleaned. Next, a psychiatrist is called and told the person’s symptoms. If the person is violent, a night duty nurse watches the person overnight.
One of these providers has developed a relationship with a government mental hospital. After the provider “rescues” an individual, the individual is brought to the police station where a memo is written to allow temporary shelter at the provider’s facility. At the facility, a medical certificate is completed by three or four doctors and a complaint is filed with the police department requesting assistance. A “First Information Report” is used to file the complaint because there is no other legal form available. The Joint Commissioner then reviews the paperwork, and the Commissioner signs a reception order. The person is then taken to a government hospital for admission. Approximately thirty people a month are being admitted to the government hospital through this program.

Several aspects of these “rescue” procedures are disturbing. First, even though such acts are presumably done with the best of intentions, the use of force to “catch” a person on the street is an incredible assertion of power. These rehabilitation centres appear to be invoking an authority that is generally reserved for the state. At one rehabilitation centre, this blurring of the edges between private and governmental power is highlighted by the Magistrate’s visits and the close relationship the facility has with a government hospital.

Second, after it “rescues” a person, one of the rehabilitation centres files a “First Information Report” (FIR). According to the Commonwealth Human Rights Initiative, an FIR is “a written document prepared by the police when they receive information about the commission of a [crime].” The use of an FIR potentially criminalizes being an individual with a mental health problem, and it brings mental illness out of the realm of health law and into the realm of criminal law.

Third, the “rescued” individuals are being deprived of liberty without the benefit of legal counsel. Section 91 of the Mental Health Act (MHA) provides for the free legal representation of a “mentally ill person” “in any proceeding under this Act before a District Court or a Magistrate.” However, based on the above-stated descriptions of admission procedures, it does not appear that “rescued” individuals are being provided with legal assistance when they are produced before a Magistrate for the issuance of a reception order. This is an important topic for future research. As Professor Michael L. Perlin has written in a recent article entitled International Human Rights Law and Comparative Disability Law: The Universal Factors, “[t]he development of mental disability law in the United States tracks – inexorably and almost absolutely – the availability of appointed counsel to persons facing commitment to psychiatric institutions, to those being treated in such institutions, and to those seeking release from such institutions.”

Fourth, the use of force by rehabilitation centres violates the Convention on the Rights of Persons with Disabilities (CRPD). Professor Amita Dhanda has concluded that, although the CRPD

 

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text “neither expressly prohibits nor permits forced intervention,” the ambiguity should be construed in light of the complete document’s emphasis on the dignity and autonomy of persons with disabilities. It is clear, however, at the very least, that the CRPD prohibits forced interventions with regard to rehabilitation: Article 26 specifically states that “habilitation and rehabilitation services” must be “voluntary.”

More generally, the CRPD emphasizes that a person with a disability has legal capacity. The CRPD requires that, if and when it is necessary for a person with a disability to be given support in exercising his or her autonomy, this support is subject to stringent limitations in scope and duration. Pursuant to Article 12(4), the safeguards must ensure that any measures relating to the exercise of legal capacity “respect the rights, will and preferences of the person, are free of conflict of interest and undue influence, are proportional and tailored to the person’s circumstances, apply for the shortest time possible and are subject to regular review by a competent, independent and impartial authority or judicial body.”

As opposed to the CRPD, much of the MHA seems to assume that a person with a mental health problem does not have legal capacity. For example, pursuant to Section 19 of the MHA, a relative or friend of a person with a mental health problem can apply to have the person admitted to a psychiatric hospital or psychiatric nursing home. This “admission under special circumstances” provision gives extraordinary power to other individuals to act on behalf of a person with a purported mental health problem. For example, for an admission pursuant to this section of the MHA, there is no provision for a hearing unless and until the person who has been committed applies to the Magistrate for discharge.

Although involuntary treatment would seem to be out of place in rehabilitation centres, India is not the only country where it occurs. For example, according to Killaspy’s national survey of mental health rehabilitation services in England, eighty-nine percent of short-term rehabilitation services accept patients detained under Great Britain’s Mental Health Act.

India’s ratification of the CRPD means that change will have to happen relatively quickly. Pursuant to Article 33, India is required to “maintain, strengthen, designate or establish . . . a framework . . . to promote, protect and monitor implementation of the [CRPD].” Within two years after the CRPD comes into effect, India will have to submit “a comprehensive report on measures taken to give effect to its obligations under the [CRPD] and on the progress made in that regard . . .” Given the evidence of the use of force by rehabilitation centres, there is much work that remains to be done.

ooo

 

Useful Resources
Search your soul: There is courage within
 
Gitika Talwar
gitika.talwar@gmail.com
 

As part of my Clinical Psychology coursework I was required to read a book called ‘Soul Searching: Why Psychotherapy must promote moral responsibility’. I baulked at the title. Mostly expecting sentimental mumbo jumbo. Till I read it.

There is a reason they tell you to never judge a book by its cover.

Dr. William J. Doherty, besides being the author of this book is a remarkably gritty therapist for daring to say that therapists have a far greater responsibility to their clients than they previously realized. The details of his argument, I leave for another time. However, for right now I want to dwell on Dr.Doherty’s remarkable views on forced treatment. I like the fact that he chose to speak about ‘forced treatment’ in a chapter titled ‘Courage’. Throughout the chapter, Doherty attempts to lay the groundwork for his belief that there is something wrong “both clinically and ethically in not taking responsibility for how our own insecurities influence our clinical decisions.”

Doherty is clear and upfront in saying that there are clients, such as highly suicidal clients, who will fare better if they are in the hospital than outside. It however rues the fact that numerous hospitalization decisions are made out of a sense of anxiety. He acknowledges the deep seated fear that many therapists have – that they cannot bear the thought of their client committing suicide. However, he places his loyalty to clients on a higher pedestal than loyalty to the fear of consequences of suicide.

Doherty further surports the strong-willed statements he made

 

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regarding voluntary hospitalization by providing readers an example of a past client of his who had a history of depression and had begun speaking about suicide rather often.

Throughout the book, the individual autonomy framework has been expanded to include the community and family that the client is part of because of Doherty’s argument that focusing primarily on the client at the exclusion of family and community makes it less likely that clients will think about the consequence of their actions (or inactions) on others, and that it is unnatural to expect people to become pure individualists at the cost of the community they belong to. Emerging from the same framework, Doherty asks his client (who is threatening suicide) to talk about the impact his death is likely to have on the different members of his family and following this conversation, he asserts that suicide is not an option. Doherty noticed that his client seemed to like the phrase “not an option”, perhaps because it reminded him that suicide was a choice in his hands just like many other choices and they had to seek out those other choices (choices to live) before he chose to die. Just the way a therapist has to seek choices that promote autonomy rather than the ones that only promote self-satisfaction.

It is important to remember that nobody is “forced to hospitalize”, we “choose” to hospitalize. Like all therapeutic choices, we need to ensure that our choices were aided by therapeutic goals and not by fear. It is also important to remember that promoting life is a therapeutic goal that has to be achieved in collaboration. Force is antithetical to life.

Doherty and his client agreed to a verbal pact – that the client would tell Doherty when he was thinking about suicide and Doherty would ask the client for permission before choosing hospitalization. The client did keep good on his promise and placed an extremely agitated call to Doherty, saying he had taken a lethal dose of his antidepressant medication and had called just to act on his promise. Doherty was definitely agitated and felt like it took all his courage to not call for an ambulance right away but he knew he had to keep his end of the promise. Calling this ambulance may have enhanced his credibility among his colleagues but for the client, Doherty would lose credibility forever.

Doherty continued to speak to his client, eventually telling him that he had the right to decide his own fate but that Doherty was unsure if he was in the frame of mind to make a decision. Doherty reminded the client of the fact that life-altering changes are not to be made when one is depressed or when one is extremely happy. A simple assertion by the therapist that cut past the noise about morality and instead just asked the client to think about suicide as a decision, which he had to choose to act upon or not. The client argued on behalf of suicide, saying that life would never really get better. Doherty acknowledged that the client could be right but he wanted to speak more about it and could not allow the client to make a decision in this frame of mind. He asked for permission to call the hospital and this time the client said yes.

Doherty looks back at this decision and realizes that he had lost precious “rescue” time when he thinks of the fact that the client had taken a lethal dose and the dose was taking effect as they spoke, but he chose to support the client’s autonomy. He was glad that the client eventually agreed to call the ambulance and Doherty was glad that he did not have to stand before a court to explain why he chose autonomy over life. There is a fine balance between supporting autonomy and possible death, and shunning autonomy to choose life. Courage as a virtue, coupled with good judgment helped Doherty to sail through a very stormy sea.

He writes very movingly about the need for therapists to be honest about their failure of nerve, about their fear of being held responsible for death, so that there can be more space for conversation about how to promote life. He cautions about how ‘failure of nerve’ rarely lets us see clients outside our ‘invisible veil of distortions.’

Doherty’s argument made me think more actively about decisions that clients want to make, such as suicide, and how we need to be able to encourage a more coherent decision making than crumble under the fear of asking uncomfortable questions or making uncomfortable decisions (ones that contradict what we were taught). Also, that we need to have the courage to confront our inner lives while we work with our clients and help them confront theirs. I like the parallels that Doherty draws between surgeons and therapists – just as surgeons have to act with special courage during emergency operations, therapists are called to be brave about their inner lives and act with morality in tough situations.

I like how Doherty concludes his chapter on ‘Courage’ - ‘Firmness of spirit is an acquired virtue that as therapists we are called to embrace and cultivate throughout our careers, for the good of our clients and the community, and for the enrichment of our own humanity.’

Kudos to that.

ooo

 

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Advocacy News
Mental Health Law: On Road to Freedom
 
Amita Dhanda*
 
 

The decision by Mr. Pankaj Shah, Metropolitan Magistrate, Bandra, that Mr. Faisal Khan, Amir Khan’s brother, need not be in anybody’s custody and can live anywhere he wants is a clarion call for the rights of persons living with mental illness. The significance of the decision is that it speaks for the autonomy and freedom of a person even whilst acknowledging that he is living with mental illness.

The Mental Health Act of 1987 allows the friends and family of a person diagnosed with mental illness to seek his or her involuntary institutionalization, provided the afflicted person is a danger to self or others; or is suffering from severe mental disorder which merits institutionalization. Thus the law does not deprive liberty and autonomy on a finding of mental disorder alone. Such a consequence occurs only after these additional grounds are fulfilled. Unfortunately in a large volume of judicial decisions in the mental health arena, courts have issued orders of institutionalization upon a finding of mental illness alone. This is especially the case when the decisions are made by the first courts; though appellate courts have been equally culpable. This situation has continued, despite some crucial rulings of the Indian Supreme Court, which emphasized that whilst mental illness was a threshold condition, the civil rights disqualifications would come into force only after the additional requirements have been fulfilled. The decision of the Bandra Metropolitan Magistrate seems to be an example of one of the few cases where the directive of the Supreme Court has been understood both in letter and spirit. The judge was assisted in his decision by the fact that the JJ Hospital authorities made a distinction in their opinion between a diagnosis of mental illness and a finding that a person is unable to live on his own due to mental illness. The significance of the decision is that it accepts that incapacity to care for self is not a necessary or inevitable consequence of a diagnosis of mental illness.

It needs to be appreciated that the Court’s refusal to order forced treatment is not an embargo on obtaining treatment, insofar as both law and medical practice allow persons living with mental illness to voluntarily seek treatment. In closing the door to coercion, Magistrate Shah has extended an invitation to the healing professions to sharpen their skills of persuasion. Psychiatry and psychiatrists are geared to offer relief and assistance to persons battling with psychological conditions. Ordinarily, the logical consequence of the availability of such assistance would be that the persons needing such treatment would seek it on their own: They do not need to be forced and coerced into obtaining the same. The incapacity of the victim is offered as the standard defense against this criticism. It is contended that psychiatrists are forced to practice coercion because afflicted persons lack insight and hence do not know what is good for them. Without entering into disputes on the truth or falsehood of this justification, it is necessary to note that psychological sciences have made no effort to surmount this obstacle of patient recalcitrance through expertise. Instead they have opted for convenience and steamrolled patients into submission with the force of the law.

Indian families, as families anywhere, are as much sites of aggression and dispute as of comity and protection. This aggression, dissent, or deviance gets further complicated when implicated with a psychiatric diagnosis. A medical explanation for an interpersonal or psychosocial problem can only further complicate matters as it deflects attention from the root problem. It is important that both law and psychiatry recognize this reality and resist falling into the trap of proffering facile medical explanations for interpersonal difficulties, especially as these explanations carry within them the danger of disempowering the afflicted person and demonizing the family.

Taare Zameen Par struck a chord in the hearts of so many because it raised a voice against the totalitarianism of the education system. Such straight jacketing of individuals by labels is not confined to the educational system alone. Similar and deeper queries can be raised on the mental health system. The metropolitan magistrate, Bandra, has provided this space for reflexive understanding. This process is further strengthened by the fact that the newly adopted UN Convention on the Rights of Persons with Disabilities recognizes the full legal capacity of persons with mental disabilities to live their lives according to their own lights. This Disabilities Rights Convention, which India has both signed and ratified, recognizes that persons with disabilities have the right to obtain support with respect and dignity instead of it being forcibly rammed down their throat by the force of the law. The Faisal Khan decision in respecting the preference of Mr Faisal Khan to live alone and to self manage his own treatment has further pushed Indian Mental Health Law in this forward looking direction.

* Professor of Law, National Academy of Legal Studies and Research, Hyderabad [amitadhanda@gmail.com]

 

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Advance Directives: An Effort to Oust Force

 
Amita Dhanda
 

We are presently engaging with the issue of forced intervention in mental health and why such interventions are counter-indicative to both the health and the liberty of persons living with mental illness. Whilst danger to self and others is put forth as one explanation for the use of forced intervention, the loss of ability to make decisions is put forth as the other explanation. Any person can, by a Mental Health Advance Directive state how they want their care and treatment to be organized, in case they lose the ability to make or express such decisions. This directive can state both what the executing persons want or do not want. If they so desire, and primarily to ensure that, the wishes recorded in the directive are duly executed, the executing persons can nominate one or more persons as their agents to ensure that their treatment happens in accordance with their directive. The executor of the Directive can anticipate as many questions on which decisions may be required and give instructions for the same. The executor can also decide how much finality they wish to confer on the Directive and in what circumstances would they wish to change it.

It is pertinent to note that whilst any person can execute and register a mental health advance directive, the need to execute such directives is primarily impressed on persons living with mental illness. And this is the case even when for example the reasoning given by the legislature of the State of Michigan for observing May 2006 as Advance Directive month could be equally appropriately be extended to Mental Health Advance Directives. The House Resolution stated that Advance Directives were required because “each of us values dignity, independence and self determination. There are many circumstances in which we may lose the ability to express our decisions about our medical and personal care”. If persons sign an advance directive then such decisions can be made in accordance with their will without “the need for guardianship, a legal proceeding by which an individual loses many basic rights”. The House thus adopted the aforementioned Resolution in order to overcome the informational and emotional barriers to the signing of advance directives.

The Bazelon Centre of Mental Health has hosted a template for a Psychiatric Advance Directive on its website. This Directive has been formulated to enable persons living with mental illness to ensure that their treatment is carried out in accordance with their wishes, without questioning or problematizing the legal attribution of incapacity to persons living with mental illness. I accept that all persons including persons living with mental illness can lose the ability to make decisions with regard to their treatment and care; and persons living with mental illness like all other persons need to take steps to protect their dignity, independence and self determination. However such steps are not especially required by persons living with mental illness and the standard form for a Mental Health Advance Directive should be constructed in acknowledgement of the fact. I have therefore reworked the template formulated by the Bazelon Centre as a form which, can be used by persons who so desire, to Advance Direct their mental health treatment. This form has no legal status in India today, insofar as there is no legislation by which advance directives have been recognized or a procedure for their registration specified. However section 18 (f) of the Registration Act 1908 gives the all inclusive residuary option to register any document. This section can be employed to register advance directives. In availing of the registration option, executors of advance directives would stamp their will with the solemnity and formality of law, whilst retaining the autonomy to organize their own affairs.

 

Template of an Advanced Directive:

I] PHYSICIANS AND OTHERS PLEASE NOTE:
I have an advance directive for mental health decision-making, a legal document stating my preferences as to mental health care and treatment has been duly registered. A copy may be found at: ______________________________________________

If I am unable to make or express my decision with regard to my care and treatment, please obtain this document and respect the choices I have registered in it.

My name: ____________________________

My PAN : ___________________________

I have appointed as my agent for mental health decision-making ________________________________ , who can be reached at __________________(day) or ________________ (evening). This person has been authorized and informed of my will and preference and shall express and make decisions about my mental health treatment in the event that I am unable to make or express such decisions.

II] Appointment of Agent For Mental Health Care

Make sure you give your agent a copy of all sections of this document.

Statement of Intent to Appoint an Agent:
I, (your name)______________________________, being of sound mind, authorize a health care agent to make certain decisions on my behalf regarding my mental health treatment when I lose the ability to do so. I intend that those decisions should be made in accordance with my expressed wishes as set forth in this document. If I have not expressed a choice in this document, I authorize my agent to make the decision that my agent determines is the decision I would make if I had the ability to do so.

1. Designation of Mental Health Care Agent
A. I hereby designate and appoint the following person as my agent to make mental health care decisions for me as authorized in this document. This person is to be notified immediately of my admission to a psychiatric facility.
Note: Make sure to list this person in Part IV of your advance directive.
Name: ____________________________________________
Address: ________________________________________________________________
Day Phone Number ________________________ Night Phone ________________________

...
 

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B. Agent’s Acceptance: I hereby accept the designation as agent for

(your name) ______________________________________________________________________

(your agent’s signature)_____________________________________________________________

Designation of Alternate Mental Health Care Agent
If the person named above is unavailable or unable to serve as my agent, I hereby appoint and desire immediate notification of my alternate agent as follows:

Name: ___________________________________________________________________________

Address: _________________________________________________________________________

Day Phone Number ________________________ Night Phone ______________________________

Note: Make sure to list this person in Part IV of your advance directive.

Alternate Agent’s Acceptance: I hereby accept the designation as alternate agent for

(your name)_______________________________________________________________________

(Your agent’s signature)_____________________________________________________________

The following paragraphs will apply when you appoint an agent.

2. Authority Granted to My Agent
Initial if you agree with a statement; leave blank if you do not.
A. ________ If I lose the ability to give consent to mental health care treatment, I hereby grant to my agent the power and authority to make mental health care decisions for me, including the right to consent, refuse consent, or withdraw consent to any mental health care, treatment, service or procedure, in accordance with the instructions and/or limitations I have set forth in this advance directive. If I have not expressed a choice in this advance directive, I authorize my agent to make the decision that my agent determines is the decision I would make if I were competent to do so.

B._________ Having named an agent to act on my behalf, I do, however, wish to be able to discharge or change the person who is to be my agent if that agent is instrumental in the process of initiating or extending any period of psychiatric treatment against my will. This advance directive would be the basis of my asserting my ability to revoke or change agents in this circumstance in assertion of my dignity and self-determination. Even if I choose to discharge or replace my agent, all other provisions of this advance directive shall remain in effect and shall only be revocable or changeable by me at a time when I have the ability to make informed health care decisions.

III] Statement Of My Desires, Instructions, Special Provisions And Limitations Regarding My Mental Health Treatment And Care

In this part, you state how you wish to be treated (such as which hospital you wish to be taken to, which medications you prefer) if you become incapacitated or unable to express your own wishes. If you want a paragraph to apply, put your initials after the paragraph letter. If you do not want the paragraph to apply to you, leave the line blank.

 
1.   My Choice of Treatment Facility and Preferences for Alternatives to Hospitalization If 24-Hour Care Is Deemed Medically Necessary for My Safety and Well-Being
A. _____ In the event my psychiatric condition is serious enough to require 24-hour care and I have no physical conditions that require immediate access to emergency medical care, I would prefer to receive this care in programs/facilities designed as alternatives to psychiatric hospitalizations.
A1. _____ I would prefer to receive 24-hour care at the following programs/facilities:  
______________________________________
______________________________________
______________________________________
B._____ In the event I am to be admitted to a hospital for 24-hour care, I would prefer to receive care at the following hospitals:
______________________________________
______________________________________
______________________________________

C. _____ I do not wish to be committed to the following hospitals or programs/facilities for psychiatric care for the reasons I have listed:

Facility’s Name:_________________________________
Reason: ________________________________________________________

Facility’s Name:_________________________________
Reason: ________________________________________________________

Facility’s Name:_________________________________
Reason: ________________________________________________________

 
3. My Preferences About the Physicians Who Will Treat Me if I Am Hospitalized.
Put your initials after the letter and complete if you wish either or both paragraphs to apply.
A. __________My choice of treating physician is:
Dr. _______________________________
Phone number _____________________
OR
Dr. ______________________________
Phone number ____________________
OR
Dr. _____________________________
Phone number ____________________
B. __________I do not wish to be treated by the following, for the reasons stated:
Dr. ______________________________________
Reason: ___________________________________________________________
Dr. ______________________________________
Reason: ___________________________________________________________
Dr. ______________________________________
Reason: ___________________________________________________________
 
 

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4. My Preferences Regarding Medications for Psychiatric Treatment
In this section, you may choose any of the paragraphs A-G that you wish to apply. Be sure to initial those you choose.

If it is determined that I am not legally competent to consent to or to refuse medications relating to my mental health treatment, my wishes are as follows:

A. _____ I consent to the medications agreed to by my agent, after consultation with my treating physician and any other individuals my agent may think appropriate, with the reservations, if any, described in (D) below.
B._____ I consent to and authorize my agent to consent to the administration of:

Medication Name

----------------------------------------------------------------------------------------------------------------------------------------------------------------

Not to exceed the following dosage

:-----------------------------------------------------------------------------------------------------------------------------------------------

OR

In such dosage(s) as determined by

Dr.-----------------------------------------
Dr.-----------------------------------------
Dr.-----------------------------------------
Dr.-----------------------------------------

C._____ I consent to the medications deemed appropriate by Dr._________________________, whose address and phone number are: ______________________________________________________________________________
D. _____ I specifically do not consent and I do not authorize my agent to consent to the administration of the following medications or their respective brand-name, trade-name or generic equivalents:

Name of Drug

-------------------------------------------------------------------------
-------------------------------------------------------------------------
-------------------------------------------------------------------------

Reason for Refusal

------------------------------------------------------
------------------------------------------------------
------------------------------------------------------

E._____ I am willing to take the medications excluded in (D) above if my only reason for excluding them is their side effects and the dosage can be adjusted to eliminate those side effects.
F. ____ I am concerned about the side effects of medications and do not consent or authorize my agent to consent to any medication that has any of the side effects I have checked below at a 1% or greater level of incidence (check all that apply).
_____ Tardive dyskinesia _____ Loss of sensation _____ Motor restlessness _____ Seizures  _____ Muscle/skeletal rigidity _____  Tremors _____  Nausea/vomiting _____ Neuroleptic Malignant Syndro _____ Other ______________

G._____ I have the following other preferences about psychiatric medications:

---------------------------------------------------------------------------------------------------------------------
---------------------------------------------------------------------------------------------------------------------
---------------------------------------------------------------------------------------------------------------------

 

5. My Preferences Regarding Electroconvulsive Therapy (ECT or Shock Treatment)

If it is determined that I am not legally capable of consenting to or refusing electroconvulsive therapy, my wishes regarding electroconvulsive therapy are as follows:
Initial A or B; if you check B, you must also initial B1, B2 or B3:

A._____ I do not consent to administration of electroconvulsive therapy.

B._____ I consent, and authorize my agent to consent, to the administration of electroconvulsive therapy, but only:
B1. _____with the number of treatments that the attending psychiatrist deems appropriate;

OR

B2. _____ with the number of treatments that Dr. __________________________ deems appropriate. Phone number and address of doctor:
___________________________________________________________________________________
________________________________________________________________________

OR

B3. _____for no more than the following number of ECT treatments: ____________

C. _____ Other instructions and wishes regarding the administration of electroconvulsive therapy:
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________
_______________________________________________________________________________

 

6. Consent for Experimental Studies or Drug Trials

Initial one of the following paragraphs.

 A. _____ I do not wish to participate in experimental drug studies or drug trials.
B. _____ I hereby consent to my participation in experimental drug studies or drug trials.
 C. _____ I authorize my agent to consent to my participation in experimental drug studies if my agent, after consultation with my treating physician and any other individuals my agent may think appropriate, determines that the potential benefits to me outweigh the possible risks of my participation and that other, non-experimental interventions are not likely to provide effective treatment.
 

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V Statement Of My Preferences Regarding Notification Of Others, Visitors, And Custody Of My Child(ren)

1. Who Should Be Notified Immediately of My Admission to a Psychiatric Facility

If I am unable to do so, I desire staff to notify the following individuals immediately that I have been admitted to a psychiatric facility:

Name:_________________________
Relationship: ____________________
Address: ________________________
________________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
It is also my desire that this person be
permitted to visit me: Yes_____ No ____
Name:_________________________
Relationship: ____________________
Address: ________________________
________________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
It is also my desire that this person be
permitted to visit me: Yes_____ No ____
Name:_________________________
Relationship: ____________________
Address: ________________________
________________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
It is also my desire that this person be
permitted to visit me: Yes_____ No ____
Name:_________________________
Relationship: ____________________
Address: ________________________
________________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
It is also my desire that this person be
permitted to visit me: Yes_____ No ____
 
2. Who Should Be Prohibited from Visiting Me
I do not wish the following people to visit me while I am receiving care in a psychiatric facility:
Name Relationship Name Relationship
       
       
       
 

3. My Preferences for Care & Temporary Custody of My Children

In the event that I am unable to care for my child(ren), I want the following person as my first choice to care for and have temporary custody of my child(ren):

Name:_________________ Relationship: ____________________
Address: ________________________________________________
City, State, Zip:______________________________________ 
Phone number: (Day) ___________________ (Evening)________________

In the event that the person named above is unable to care for and have temporary custody of my child(ren), I desire one of the following people to serve in that capacity.
My Second Choice
Name: __________________________
Relationship: _____________________
Address: ________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
My Third Choice
Name: __________________________
Relationship: _____________________
Address: ________________________
Phone (Day):_____________________
Phone (Eve.): ____________________
 
Part VI Statement Of My Preferences Regarding Revocation Or Termination of This Advance Directive
Initial all paragraphs that you wish to apply to you.
1. Revocation of My Psychiatric Advance Directive
___________My wish is that this mental health directive may be revoked, suspended or terminated by me at any time...
 

2. Other Instructions About Mental Health Care
(Use this space to add any other instructions that you wish to have followed. If you need to, add pages, numbering them as part of this section.)
____________________________________________________________________________
____________________________________________________________________________
____________________________________________________________________________
____________________________________________________________________________


3. Duration of Mental Health Care Directive
Initial A or B.
A._____It is my intention that this advance directive will remain in effect for an indefinite period of time. OR B._____It is my intention that this advance directive will automatically expire two years from the date it was executed.
 
 

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VII Advance Directive of (your name)____________________________ for Mental Health Care Decision making

Signature Page

By signing here I indicate that I understand the purpose and effect of this document.

 
Your Signature Date
 
 
The directive above was signed and declared by the “Declarant,” (your name) _______________________________________ , to be his/her mental health care advance directive, in our presence who, at his/her request, have signed names below as witness. We declare that, at the time of the execution of this instrument, the Declarant, according to our best knowledge and belief, was under no constraint or undue influence. We further declare that none of us is: 1) a physician; 2) the Declarant’s physician or an employee of the Declarant’s physician; 3) an employee or a patient of any residential health care facility in which the Declarant is a patient; 4) designated as agent or alternate under this document; or 5) a beneficiary or creditor of the estate of the Declarant.
Dated at _____________________________________________ (state, city),
this ___________________ day of ___________________, 19____.
 
Witness Signatures
Witness 1: _______________________________
Signature of Witness 1______________________
Name of Witness 1 (printed) _________________
Home address of Witness 1 __________________
City, State, Zip Code of Witness 1 _____________
Witness 2: _______________________________
Signature of Witness 2______________________
Name of Witness 2 (printed) _________________
Home address of Witness 2 __________________
City, State, Zip Code of Witness 2 _____________
 

(for use by the notary):

State of_________________, County of ___________________________

Subscribed and sworn to or affirmed before me by the Declarant,
_______________________________________________,

and (names of witnesses)
________________________________________________ and
________________________________________________,

witnesses, as the voluntary act and deed of the Declarant, this ___________ day of ___________, _____________.

My commission expires:
__________________________________________________________
__________________________________________________________

Notary Public

 
Record of Psychiatric Advance Directive
Keep this form and give a copy to your agent, if you have appointed one.
My name My health care agent’s name
My address My health care agent’s address
My date of birth My health care agent’s telephone number(s)
I have given copies of this form to:
Name Address or phone
Name Address or phone
Name Address or phone
Name Address or phone
Name Address or phone
 
ooo
 

aaina

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