aaina - a mental health advocacy newsletter : march 2003
Vol. 3 No. 1

March 2003

 

Editorial

 

Youth & Mental health

One- third of the population of India is made up of youth. They are full of energy, enthusiasm and ideas. They are a great reservoir of abundant talent, achievement and potential. One would think therefore, that the policy makers and the government have envisaged the problems and priorities of the youth and included them in the policy documents and laws.

In the context of globalisation, dreams and realities for the youth are in a flux. Their lives are beset with problems ranging from unemployment, relationship problems, substance abuse, sexual abuse, eating disorders, AIDS, depression and suicide. But the National policy on youth (1985), its updated version (1997), the National mental health policy and mental health act are silent on the issue of youth and mental health.

While the University Grants Commission through its process of assessment of colleges has advocated that colleges should set up counselling centres, we need to ensure that these centres are student-friendly and the personnel in these centres are equipped to deal with the myriad issues that come up in counselling. Youth is not a monolith and cannot be homogenized into an urban, middle-class mass. Hence the mental health professionals involved with youth in educational institutions and NGOs need to be sensitised to issues of gender, religion, caste, class, alternate sexuality, combating the stigma of mental illness, AIDS to do justice to their task.

We also need to address the mental health problems of marginalized youth and the thousands of drop-outs, in cities and villages outside the ambit of formal education. The efforts of organizations working with marginalized sections of youth like street youth, rural and tribal youth, gay and lesbian youth need to be documented. Involving these different youth in mutual interaction and dialogue can offer all of us a lesson in "multiple realities’’.

Youth is a "make or break" period in life. We who care about the mental health of youth need to build and strengthen enabling and creative structures for them and with them in this crucial period. This issue of aaina is a small step in that direction. Do share your experiences of working in the area of youth and mental health with us. We are looking forward to your feedback.

   

Contents

   
Reflections: Interventions for Youth and Mental Health 2
   
Youth and Well Being 5
   
Advocacy News: Direct ECT, a shocking matter 6
   
Minding the Young: Experiences of a teacher 8
   
Direct ECT "safe"- AIIMS doctors advise SC 10
   
No room to love- Lesbian Suicides 11
   
Students Column- A dialogue on mental health 14
   
Experiences from a tele-counselling center 17
   
Dear aaina 19
   
Images: Voices 20
 
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reflections

 

Interventions for youth and mental health: Experiences of a psychology teacher

   

Jaya Harish

     

Working as a lecturer and counselor in a college setting, interaction with the age group of 18-22 year olds, has made me acutely aware of the growing need to incorporate modules of mental health development in the regular curriculum. With the educational system’s lopsided thrust on academic success alone, the realm of mental well-being has been almost completely neglected in mainstream educational programs. The emphasis of the educational system is mainly on rote learning, under the garb of achieving academic excellence. If we observe a cross section of the student population today, we would realize that their analytical skills have not been developed at all, as the emphasis of the curriculum is exam oriented rather than knowledge acquisition.

Students gradually start equating marks with their "life worth". Accompanying this "success based formula" of achievement is a whole baggage of frustrations due to inability to handle failure, cut throat competition and pressure of grades oriented parents. Our educational setting sadly fails to address the stress levels that adolescents are facing today. In fact it acts as one of the contributory factors in increasing the stress levels. There is a need for us to take a serious cognizance of this fact.

Extra curricular activities and extension programs definitely help develop adjustment skills, however these activities are limited to a chosen few while the majority fails to experience the advantages of them.

   

(...continued on page 3)

     

Editorial Team
Bhargavi Davar
Sadhana Natu
Radhika Kulkarni
V. Radhika
Soumitra Pathare

 

aaina is a mental health advocacy newsletter. Advocacy demands critical, creative and transformative engagement with the state, policy makers, professionals, law, family and society at large. aaina will thematically cover issues in community and mental health, NGOs in mental health, self-help and healing, non-medical alternatives in mental health, rights, ethics, policy and needs of special groups. aaina provides a forum for user expression of their experiences with mental health services and debates issues concerning rights of persons with psychiatric disabilities. We look forward to meaningful dialogue with individuals and groups alert about these issues.

Those interested in receiving copies of aaina may contact us at wamhc@vsnl.net. Write to us with all your suggestions, criticism and viewpoints on the issues covered.

This issue of ‘aaina’ was edited by Sadhana Natu.

 

Design and Layout
Anand Pawar

Printing
Anita Printers, Pune

 

Contact Address

Center for Advocacy in Mental Health,
36 B, Ground Floor, Jaladhara Housing Society, 583, Narayan Peth, Pune 411 030

Tel: 0091-20-4451084
Email: wamhc@vsnl.net

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www.camhindia.org

 

Adolescence is recognized as an age of difficulties, caused by the rapid physical, emotional, intellectual and social changes that accompany it. Adolescents struggle with newly encountered obstacles such as awkwardness, self-discovery, independence, educational demands and puberty. Even though the developmental stage of adolescence has not dramatically changed over the past twenty years, today’s adolescents are living in an environment that is more complex and contains a greater amount of negative influences.

Problems for adolescents are increasing all the more in the present clock-driven, fast paced, competitive, profit and achievement obsessed modern society. Compared to a few decades ago, today’s kids are spending less time with adults and spending more time in front of the television and with peers. These changes require acquiring new skill sets for coping. However neither the Indian educational setting has been of much help in the development of essential life skills, nor are the parents of much help as they themselves are confused and scared to handle these fast paced changes.

I have interacted with several adolescents who seek counseling on a wide range of issues. Many of them approach with relationship related issues like dating, friendship or family problems. Many of them find it difficult to draw boundaries in relationships or are unable to be assertive, and as a result are often taken advantage of. They are overwhelmed by the emotions they experience in these relationships and are unable to handle them. Some have difficulty in initiating and maintaining relationships, inspite of the strong desire to do so. These interpersonal difficulties seem to form the focus and are a cause of many stress related manifestations.

Many students seek intervention for exam related anxiety, however at the base of it lies their attitude of placing undue importance on marks, fear of accepting failure and the lack of basic problem solving skills, including organizing, scheduling, deciding priorities etc.

Another issue that is often sought is career guidance. Admitedly, the confusion surrounding vocational choice is because of the numerous careers available to choose from. This is coupled with low level of self awareness and hence making a choice is tough…Some students seek counseling for

 

problems associated with their social conditions, namely economic difficulties, gender bias in the family, and parental problems.

Interventions today in the area of adolescent psychology are of a curative nature. Very little emphasis is being placed on the preventive aspect of mental health. The studies carried out in preventive mental health are mainly focused on decreasing risk taking behaviours and antisocial behaviour. However along with decreasing risk taking behaviors it is also necessary to improve the emotional health of adolescents and equip them with skills to face the challenges of the future. I strongly feel that including training modules on life skills will definitely help reduce the intensity and incidence of psychological difficulties faced by the students.

The WHO (1994) has listed out the major life skills essential for emotional well-being and happiness. They are- decision making, problem solving, critical thinking, creative thinking, effective communication, interpersonal relationships, self-awareness, and empathy, coping with emotions and coping with stress.

We need to aim towards raising the emotional and social competence in youth as a part of their regular education, not in remedial mode but as a set of essential skills. The most effective approach would be a three fold one, where intervention and advocacy is carried out simultaneously with the student, the parents, and the teachers. The efficiency of the training would be optimum if the program could involve maximal factors that affect the adolescent’s well being, two of the most influential being the family and the educational setting. Peer related issues could be discussed in the training sessions. The modules could include

For Teachers and parents:

  Awareness regarding normal adolescent development
  Recognizing stress and stressors in adolescent
  Facilitating adaptive coping behaviour in the adolescent
  Awareness regarding various psychological disorders, especially in adolescence
  Information regarding support systems that parents could approach in case of psychological difficulties.
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For Students:
  Life skills listed by WHO
  Awareness regarding various psychological disorders.
     

This could be carried out either in a non-curriculum based approach, where it is treated as a stand-alone subject; or a curriculum based approach where life skill modules are incorporated into regular lessons, without taking separate classes for the modules.

One of the reasons that the youth are poor in basic life skills is that as a society we have not bothered to make sure that every child is taught these essentials. By leaving the emotional lessons children learn to chance, we risk wasting an opportunity to help them cultivate a healthy emotional repertoire.

It is high time that educators and professionals from the fields of psychology advocate the need for inclusion of these essential skills with a thrust on positive mental health and emotional well-being.

Jaya Harish teaches Psychology at St. Mira’s college, Pune and also does counselling. She can be contacted at- hkottara@vsnl.net

 

Drug Tracks-I

The British Government has launched an "intense review" into the safety of the anti-depressant drug Seroxat, an SSRI. After months of intense political and media pressure, a group of Government health experts have begun a serious probe into the effects of Britain’s most widely prescribed anti-depressant. The Committee on Safety of Medicines - who are responsible for monitoring the safety of licensed drugs first met last month to discuss growing concerns of thousands of patients and health professionals over the alleged link between Seroxat and addiction. Now they want more time to find out whether there are legitimate concerns with the safety of the drug. Officials say the committee agreed more research needed to be done before final recommendations about the safety of the drug can be made, refusing to rule out the possibility that Seroxat can lead to dependence.

 

 

The Committee on Safety of Medicines is one of a number of independent advisory committees established under the Medicines Act, which advises the UK Licensing Authority on the quality, and safety of medicines to make sure public health standards are met and maintained. The CSM is there to provide advice to the Licensing Authority on whether new products should be allowed to market themselves in this country. They must also monitor the safety of medicines already being marketed. Members of the committee include pharmacists, pharmacologists, toxicologists and physicians from a wide range of disciplines working in general practice, hospitals and universities across the UK. See www.socialaudit.org.uk for more regarding this.

Drug Tracks-II

www.ritalindeath.com talks about the death of a 14 year old boy called Matthew from the long term use of Methylphenidate (commonly known as Ritalin), a formulation commonly used in the treatment of ADHD & ADD. Autopsy and the coroner’s report showed signs of small vessel damage in the heart, such as caused by stimulant drugs like amphetamines. While the school forced the treatment, parents were not warned of crucial tests to determine enlargement of the heart, which can be caused by Ritalin use. The increasing use of psycho-stimulants to "manage" children in school is a cause of worry in the US, and increasingly, in India. "Medical diagnosis should remain outside the realm of education and stay there. Pressure to seek specific medical treatment is not the job of the school system", is the appeal of the distraught parents. They warn of the convenient use of spurious diagnoses such as ADHD, which may mask undiagnosed allergies, food sensitivities, neurotoxins, nutritional deficits or other psycho-social problems. In 1998, at the National Institutes of Health Consensus Conference on ADHD in the US, the National Institute of Health stated, "We do not have an independent, valid test for ADHD, and there is no data to indicate that ADHD is due to a brain malfunction". www.ritalindeath.com links with parents to educate them on the risks of using medications, which are close family to cocaine and amphetamines. The website urges everyone not to convert children into little performing robots and not to put them all into a box.

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Youth and well-being

Neelam Oswal

Clinical Psychologist

A local newspaper had an article about the necessity of old age homes. The subsequent issues of the same newspaper were full of responses to that article. Most of them were discussing the role of old people in the life of the busy youth. That reminded me of following story.

This happened in a space and time when every living being had to pass through three stages in life namely: childhood, youth and old age. The spirit of youth of all creatures was living in a stream. The spirit of old age was in a huge gigantic ocean. The stream and the sea had to stay close by. Enjoying its own being, the stream used to run joyously, till the end of a cliff and jump down from there. Many people would relax by the bank of the stream. Even birds and animals would come there for the sweet water. And the reflection of the stream in the ocean would look magnificent.

One day the stream was looking at its reflection in the sea. He was admiring himself as usual and at the same time comparing himself with the ugly, old sea. Today he could not contain his irritation anymore. He said, "Old man, we are neighbors for long. Do you know how ugly you are? I hate looking at your wrinkled appearance, you keep roaring voraciously all the times. You have no shape, nothing. Look at me, I am so beautiful. Everybody who comes here adores me. Look at the quality of my water. It is very sweet. But many of them are scared of you. Your salty water is of no use to those thirsty beings. Hmm... I have decided to change my apartment." The stream exclaimed with disgust.

The old man started speaking with a big, hoarse roar. "Yes dear friend, it is very true that you attract so many beings. I too enjoy being with you. However the cliff from which you jump down and create so much of energy leads you to me. You come to me and become just one drop of my existence. You complain about me being so shapeless and salty. Dear one, I look like that as I contain many streams like you. They come to

 

 

me along with all their minerals and make me salty. My mission in life is to help all of them for their next journey. You brag so much about your beauty. But I contain your reflection, without which you would not have been able to see your beauty.

You may continue what you are doing today, or you may explore your other abilities. This sense of being well and beautiful which depends upon others but compliments may wear out. Remember that both of us are necessary for the well being of the person. Without me you would be stagnant and bound to a particular age. And without you I will not have the energy to fulfill my dreams.

The stream started reflecting. The spirit of youth never complained about his old companion. He started exploring his different abilities. He was still calming down thirsty people. The passers-by were still praising his beauty. However the stream knew now the secret of his well-being. In fact he started seeking the old man’s experienced words and broad outlook to strengthen him. And then nobody ever saw the youth restless or unwell.

The well being of youth cannot be discussed in isolation from adulthood or old age. Different systems of medicine have thought over the reasons of well-being and ill health. As per the basic assumptions of that system the reasons and remedies may vary. However, two conclusions seem to be common in all these systems, 1) In different stages of development human beings are vulnerable to different sorts of ill health and 2) Prevention is better than cure.

The well being of youth is necessary for the wellbeing of the society at large. It is all inter-related. Young people show us the truth of what Shakespeare said, that the sorrow of youth lies light on the shoulder of youth. The youthful energy and enthusiasm of working tirelessly, does attract many towards them. And still we see many of them restless, and frustrated. Some intrinsic or extrinsic factors add fuel to this frustration. In fact ever looking forward, restless to achieve further dreams is a sign of life. However care should be taken that this restlessness does not become unwellness.

(...continued on page 9)

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advocacy news

Direct ECT: A shocking matter
 

At the Center for Advocacy in Mental Health, Pune, we are running a campaign against the use of direct ECT (Electro Convulsive Therapy without anesthesia). This campaign follows in the wake of the recent Supreme Court Judgment, approving of the procedure, and the shocking promotion of the practice by psychiatric professionals recently.

In direct ECT, an electrical current is passed, which throws the body into epilepsy like seizures. While the patient is conscious in the beginning, he or she is rendered unconscious when the grand mal seizure starts. He is held down physically to prevent fractures and internal injuries. In an ideal situation, the procedure is repeated between 6 to 10 times. But continuous dosing up to 20 times or more is not unknown or uncommon in India. In its "modern" or "modified" form (Modified ECT), muscle relaxants and anesthesia are given to reduce the overt epileptic / muscular convulsions and patient anxiety. The muscle relaxant paralyzes all the muscles of the body. A "crash cart" is kept nearby, with a variety of life-saving devices and medications, including a defibrillator for kick starting the heart in case of a cardiac arrest. The brain is subjected to seizure activity induced by the electrical current. The causal mechanism by which the treatment works is not known. Endocrinological, neurotransmitter and other changes have drawn a blank. It is believed that electricity itself and the seizure activity it produces is the curing element.

To make a case for direct ECT in this day and age, establishes a fresh, new low for psychiatric ethics in India. Instead of debating the issue of ‘whether or not ECT’, and what community alternatives we can create in mental health, we are placed in this ridiculous situation of debating direct ECT.

Professionals have claimed that direct ECT is virtually risk free. But no one has vouchsafed even the relative safety of ECT, whether direct or modified. The only argument made is that modified ECT is worse than direct ECT. Of course, we can expect patients and their families will be reassured by this argument.

 

Many European countries have phased out even modified ECT, while in the US its usage has come down drastically after the 1980s, following class action. The 1978 APA Task Force reported that only 16% of psychiatrists gave (modified) ECT. In the West, two important factors led to the phasing out of direct ECT: one was the discovery that between 0.5% to 20% of patients suffered from vertebral fractures; and the second was their evident terror and trauma. Kiloh, et. al. (1988) give this long list of common "complaints" following ECT, which are more acutely experienced when given direct: headache, nausea, dizziness, vomiting, muscle stiffness, pain, visual impairment due to conjunctival haemorrhages, tachycardia/bradycardia, BP surges, changes in Cardio Vascular activities, alteration in blood brain barrier, ECG changes, arrhythmias, cardiac arrest, ventricular fibrillation, sudden death, dysrhythmias, transient dysphasia, amenorrhoea, hemiparesis, tactile/visual inattention, homonymous haemianopia. Among the "risks" mentioned are the following: myocardial infarction, pulmonary abscesses, pulmonary embolism, activation of pulmonary TB, rupture of colon with peritonitis, gastric haemorrhage, perforation of a peptic ulcer, haemorrhage into the thyroid, epistaxis, adrenal haemorrhage, strangulated hernia, cerebral haemorrhage and subarachnoid haemorrhages. Infrequent "complications" that arise may be fractures (vertebrae, femur, scapula, humerus) and dislocations (jaw, shoulder), cardiac arrhythmias, apnoea and "tardive" convulsions. Among the inevitable "side-effects" are mentioned, cardiovascular responses, postictal clouding of consciousness and memory impairment. With modified ECT, the effects are "less likely" but not completely ruled out.

In India, studies have reported musculo-skeletal injuries, spinal injuries, cardiac arrest and death. Upto 2% spinal injury from use of direct ECT has been reported. The recent APA Task Force on ECT, 2001, acknowledges that mortality rates with ECT (modified) may be as high as 1 in 10,000 patients. The Task Force report also notes that 1 in 200 may experience irretrievable memory loss.

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The Bombay High Court recommended against the use of direct ECT way back in 1989, following the Mahajan Committee Recommendations. In Goa, due to legal advocacy and the proactive role of psychiatrists there, direct ECT has been banned. Death in the case of ECT is usually due to cardio-vascular or cerebral-vascular complications, followed by respiratory failure. A high percentage of patients do report fear and apprehension of the procedure, which professionals do not consider as a serious or a competent refusal. They address the refusal as one more psychiatric symptom for which they give sedatives. The European CPT (Convention for the Prevention of Torture) 2002 prohibits the use of direct ECT as a form of torture. Victims of direct ECT should be considered as victims of medical torture and brought within human rights and medico-legal jurisprudence.

In every city, a majority of private practitioners give ECT in their private clinics costing anywhere between 500 to 1000 rupees per dose. For a minimum of 6 doses, the cost would be between 3000/- to 10,000/- rupees. As readers of aaina may be aware, there are psychiatrists who ask the patient to first take an ECT before even consultation. ECT has been given to cure "naxalism" (Ramaswamy in Aaina, Vol. 1). In private practice, it is difficult to have the medical back up necessary to give anesthesia or for resuscitation. ECT guidelines do not exist in India, making it conducive for doctors to engage in rampant abuse of the procedure. The situation here is similar to sex selection tests as the private market rules the roost.

In our view, direct ECT is a matter for human rights law, prevention of torture instruments, regulation and consumer litigation, and it is not for academic discussion. We have serious objections to conduct of research on direct ECT. World history carries adequate evidence of the barbarity of the procedure. Statutory authorities, human rights commission and medical regulatory bodies must proscribe such research.

The full text of our campaign can be downloaded from our website: www.camhindia.org

  Resources:
Andrade, C. (2003) "Unmodified ECT: Ethical
Issues", Issues in Medical Ethics, Vol. 11 Issue 1, pp. 9-10.
Andrade, C., Rele, K., Sutharshan, R., Shah, N.
(2000) "Musculoskeletal morbidity with unmodified ECT may be less than earlier believed", Indian Journal of Psychiatry, 42, pp. 156-162.
Breggin, P. (1993) Toxic Psychiatry: Drugs and
ECT, The Truth and the Better Alternatives
. Harper Collins.
CPT, (2002) European Committee for the Prevention of Torture and Inhuman or degrading treatment or punishment, CPT – 2002, Chapter VI- Involuntary Commitment, Section 39 – ECT
Task Force Reports (1978, 1990, 2001) on ECT. American Psychiatric Association.
Tharyan, P., Saju, P.J., Datta, S., John, J.K., Kuruvilla, K. (1993) "Physical morbidity with unmodified ECT: a decade of experience", Indian Journal of Psychiatry, 35, Issue 4, pp. 211-214.
Wiseman, B. (1995) Psychiatry: The ultimate
betrayal
. Freedom Publishing Co. A Publication of Citizens Commission for Human Rights, LA, California.
Kiloh, L.G., Smith, J.S., Johnson, G.F. (1988) Physical treatments in Psychiatry. Foreword by Sir Martin Roth. Blackwell.
Shukla, G.D. (1985) "Death following ECT- A case report", Indian Journal of Psychiatry, Vol. 27, Issue 01, pp. 95-97.

Wse are always interested in publishing opinions and views about experiences of using ECT. Do write to us at wamhc@vsnl.net about your feedback on our campaign, and any local news on the use of the procedure.

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Minding the young’:
experiences of a Psychology teacher

 

Dr. Sadhana Natu

     

I have been teaching graduate and post-graduate students for the last thirteen years. I have also been interacting with youth through various formal and informal fora like NSS, Tarun mandals, discussion groups, counselling, support groups and social organizations. This has enabled me to play the multiple roles of teacher, friend, cousellor and confidante. It has been a privilege to share their trials and tribulations, successes and struggles.

Niyati used to sweat excessively during tests and exams. She also appeared scared and preoccupied. Was it test-anxiety or something deeper? Later on she confided that her bureaucrat father was a tyrant who demanded excellence and used corporal punishment.

Krupa’s father informed the teachers that his daughter was undergoing psychiatric treatment and could also turn violent. While the teachers indulged in discussion and became wary the students were protective of Krupa and showed lots of solidarity, support and sensitivity. Krupa relaxed and they adjusted with each other.

Milind’s father is a rickshaw driver and his mother works as a helper in a crèche. He worked to support his graduation. Whenever there was a financial crisis, his education was endangered. He compensated by participating and winning numerous debates and elocutions. He also did well academically. This boosted his self esteem and he emerged a survivor and winner.

Ashwini had to battle against poverty, caste and lack of familial support. She topped in her exams but had no money to treat her friends. While peers discussed options for entertainment, she had to struggle to survive- both economically and to continue her education. All this brought on depression and despair. Support from friends and teachers helped to pull her out of her depression and enabled her to dream on.

These and many other life stories have provided numerous learnings-

 
The need to go beyond "symptoms"
The young can teach us about flexibility, inclusion, and taking things in one’s stride.
Working class boys have to struggle to educate
themselves and the pressure on them to earn is great.
Education can provide emancipatory spaces.
Dalit and OBC students have to bear the double
burden of caste discrimination and hostility and
ill-will due to reservation. Both these prove to be major stressors for them.
Fear of marriage and life after marriage is a
psychological problem for a lot of working class and middle class girls. Inter-caste marriages also create psychosocial problems.
Many of the upper class youth tend to be laid-back, consumerist and often feel alienated from their social milieu, how to motivate them and channelise their energy?
The pressure to become high achievers and
performance anxiety is steadily increasing among urban middle and upper class youth.
‘Feel good factor’ has become a prerequisite in
relationships and relationship related problems are increasing.
Body image and ‘looking good’ is an obsession that can have serious repercussions (recent Anita Goyal incident)

How to deal with these issues when education seems neither challenging nor connected to students’ lived reality? While the usual options like counselling, training in life skills, NSS, co-curricular activities need to be strengthened we also need to create spaces for an exchange between different types and strata of youth. This will introduce them to ‘each others’ realities. This could help in creating self- reflexivity and provide new vistas to learn coping skills.

Dr. Sadhana Natu is Head, Dept of Psychology at Modern College Ganeshkhind, Pune at present teaching at Dept of Psychology, Pune University. She can be contacted at satish.sadhana@vsnl.com

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(...continued from page 5)

Youth and well-being

Well-being is a state of well being which comes from being rooted in the self. This concept of health is in alignment with the concept of swasthya proposed by Ayurveda. The World Health Organization has also proposed the bio-psycho-socio-spiritual model of health, which looks beyond the physical symptoms and focuses on the well-being of the person. Two important things for the sense of wellbeing of youth are, the work that one chooses, and secondly, relationships. Youth is the time when everybody dreams very high. But very few have the courage to live as per their dreams. Choosing the work, which they would love to do, and looking beyond the external measures of security, prestige, money, or glamour, helps him or her to be rooted in the self.

Due to natural energy very few young people would be unwell. However there is a high risk that this energy be misdirected. It is the prime responsibility of adults to help the youth to choose wisely. And when the castles built by youths develop roots in the ground with the wisdom and the folly of the earlier generation’s experience, the well-being of youth does not remain a dream.

Neelam, a clinical psychologist conducts "Heal Thy Self" workshops in Pune and can be contacted at : preetneelam@vsnl.net

 

Madness Network News,
Summer of 1985, in bapu archives

 

Drug Tracks-III

Sun Pharma, Gujarat, a major pharma company manufacturing anti-depressants and other psycho-active drugs in India, and projected as the growing star of Indian business in many business circles, has found itself embroiled once again in yet another controversy. Sun Pharma has reportedly done bio-equivalence studies on Citalopram, an anti-depressant, on daily labourers, and some patients developed gangrene and renal complications. One of them died, for which two employees of the company have recently been arrested. People’s Union for Civil Liberties, Baroda, have raised several issues about these studies, other than concern about consent. Indian guidelines for bio-equivalence studies do not exist. International guidelines say that volunteers should be healthy. "To what extent underfed volunteers can be called healthy is a moot question", write PUCL. Further, the risks of using the drug were not disclosed to the volunteers. Other good patient management with respect to administering the drug were not followed. The drug monograph indicates gaps in research with respect to patients with renal dysfunctions. PUCL asks whether the history of patients was examined before inclusion in the study. The company says patient consent was taken, but how consent was taken from an illiterate, poor community is highly questionable, according to PUCL. PUCL writes, "Soon after this controversy, Sun Pharma advertised in the newspapers asking for volunteers for trials. Is the public entitled to know what these trials are for and which ethical guidelines are followed? … Will the Drug Controller explain why we need bioequivalence studies for every export consignment? If Parliament could pass a law for the right to information in public affairs for the country, what about the right of the public at large to know what kind of trials are going on, on whom and for what purpose?" PUCL warns about increased and dangerous clinical trials in the era of post-liberalisation because of poor regulation and awareness. Mental disorder, being on high profile in "developing regions", including India, we can expect many such trials to take place in future, raising these issues again and again.

Source: Issues in Medical Ethics, Vol XI, No 1, January-March, 2003, p. 2-3

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judgment watch

Direct ECT is "safe"- AIIMS doctors advise the Supreme Court

   

 


The recent Supreme Court judgment that direct ECT is "safe", goes against modern practice of ECT in the rest of the world and has significant ramifications for patient ethics in mental health in India.


     

As readers of Aaina are aware, direct ECT was placed as a controversial and contested issue before the SC recently, following the Erwadi deaths in Tamil Nadu. In Writ Petition No. 562/2001 in Saarthak vs. Union of India, the petitioner had asked for a complete ban on direct ECT.

The response of the state and the judiciary to the use of direct ECT has been ambivalent. In response to the SC inquiry, many states have reported that direct ECT is being phased out and that, as per modern practice, only modified ECT is being used in their "mental health institutes". Some states have given a justification for continuing the use of direct ECT, while also certifying that in their State this practice is not being followed.

In its final judgment, the apex court noted that "ECT remains effective in several major mental disorders", that it is "life saving" and reduces the "risk of suicide". It further states, notoriously, that direct ECT is safer than modified ECT, as in the latter the risk of use of anesthesia and muscle relaxants is added.

Dr D Mohan, Psychiatrist, AIIMS, New Delhi, advised the apex court in this instance. The doctor observes a mortality rate of "only 0.03%" in direct ECT, considered as clinically insignificant. Dr Gauri Devi, erstwhile director of NIMHANS, wrote observing mainly that modified ECT is a non-issue in the treatment of certain mental disorders. But she did not frontally address the issue of direct ECT, the central topic of the Saarthak litigation.

The SC judgment in this regard raises several questions about the interphase between law and science, the responsibility of medical professionals when giving testimony or scientific evidence, and the collective responsibility of the sciences and the judiciary towards establishing certain standards of quality health care.

 

The main purport of the Saarthak litigation, viz about quality of care, was completely unaddressed by the esteemed court. The court has considered it necessary and sufficient to only pronounce the procedure as "safe", without any regard for the vexed question of how it is administered in practice. The AIIMS professional, for his part, did not give the background database about direct ECT, or explore the controversy surrounding it, even as a matter of informing the court. Instead of treating this as a quality of care issue and as an investigative matter, he simply certified the procedure as safe, raising the concern about questionable authorisation. The court, on its part, considered the 2 letters received from the doctors as sufficient for its judgment.

This judgment has extensive implications for the future of mental health service delivery in India. Through this judgment, the Supreme Court has given a big boost to the bio-medical profile and future of mental health in India. In promoting direct ECT, our highest court has the dubious privilege of being one of the few such, world over, to sanction a procedure considered as barbaric and obsolete.

Chris Pullman, Madness Network News, Summer of 1985, in bapu archives

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No room to love with dignity: Lesbian suicides

Sheba Tejani

 

The principal horror of any system which defines the good in terms of profit rather than in terms of human need, or which defines human need to exclusion of the psychic and emotional components of that need—the principal horror of such a system is that it robs our work of its erotic value, its erotic power and life appeal and fulfillment. Such a system reduces work to a travesty of necessities, a duty by which we earn bread or oblivion for ourselves and those we love. But this is tantamount to blinding a painter and then telling her to improve her work, and to enjoy the act of painting. It is not only next to impossible, it is also profoundly cruel".*

 

Lesbians are often accused of being self-indulgent or even elitist because of their preoccupation with matters related to that most taboo activity: sex. Sexuality is a secondary issue, they say, it is not as important as food or water or employment or even communal violence. To them I would say, is it possible to say that your eyes are not as important as your feet or as your fingers or as your tongue? Sexuality, as Audre Lorde says, is that vital and nourishing aspect of your being where life’s driving impulse, desire, finds one of its expressions. It belongs like faith, to the realm of the highly personal, where the most delicate human aspirations are realized, broken, refashioned or grappled with. It is the well of that experience which we call the inner life; it is the battleground of deeply held fears, limitations and beliefs. It is also that terrain where we can find sustenance, where we can begin to love ourselves a little more or then, learn something about who we are and what we are becoming. Sexuality entangles our past and present in such a way that it becomes one throbbing state, compelling us to experience the whole range of human emotion and moving us in ways that we cannot imagine. It forces us to look at ourselves without shame and to accept, with courage, what we find. In fact sexuality is the evidence of the incompleteness of, what left-wing liberals have eloquently criticized as, the ‘atomization’ and ‘mechanization’ of human sensibility. If we miss the significance of this area of activity, we become what Adrienne Rich calls "literal beings", sensible only to the most gross influences and persistent only in the fulfillment of the most animal needs.

Sexuality is that part of our being that is least tame, it tends to go where it will, and often in contrariness to

 

the organized responses of our colonized minds and bodies. We fall in love with the wrong people, of the wrong caste, the wrong gender, the wrong sex, the wrong class, the wrong nationality or the wrong marital status. And we are punished for it, either directly by the society that we live in, or then by internal torment. But the liberty to love and to shape that love is ours, determined as it is by a deeply personal stirring. Of course love needs to be regulated, not by the prescriptions of received structures, but by a sense of our own ethics and by intelligence. However, even beyond the multiple and intangible ways in which sexuality constitutes our beings, the decisions women make about their sexual identities can become a source of very real conflict and threat. Women’s lives often hinge on the simple fact of whether they love a man or a woman, or whether they love this ‘kind of man’ or that ‘kind of woman’.

It is one of our society’s perversions that women who love each other must pay for it by killing themselves. Women often negotiate risky personal, social and economic terrain, self-consciously, or then are forced to hazard them because they find themselves hopelessly in love with another woman. It is difficult to know decisively how many women commit suicide each year because their love for another woman cannot find fruition. The reasons for this are many: families of the girls often do not want the incident to be known as a "lesbian suicide", the suicide may simply not be understood as such, the "reason" of the suicide is often explained away by an incident that may have only been the trigger, there is a lack of information about the occurrence of suicides and related facts. Women who love women, their struggles and their love are invisible in

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any case; the stigma associated with same sex love and then with suicide further obliterates lesbian suicides from view. However, reports from the press keep pouring in at regular intervals and it is likely, for the reasons given above, that the problem is most likely grossly underestimated rather than overstated.

How do we understand these suicides? What do they mean and why do they happen? Suicide, suicidal attempts and ideation are urgent problems amongst youth today. A suicide attempt is a cry for help; it is the ultimate declaration that the pain the person is experiencing exceeds the resources for coping with the pain. People are driven to suicide out of deep despair and a feeling that there is no other way out… No other way out. The crisis appears so insurmountable that it seems easier to take one’s life than to overcome it. The attempt to take one’s life comes only after repeated and strenuous efforts to overcome the distress or to address its cause. Often suicide is at the end of a continuum of harassment, stressors, coercion, violence and general thwarting of one’s will. This repeated stress has already worn down the person’s coping mechanisms which may already be stretched to the limit, while self-confidence and belief in oneself is also generally low. At such a time a person is most vulnerable to making a suicide attempt.

On 12 November, 2002, two women threw themselves in front of a train in Bhuj, Gujarat. Their suicide notes said that they were ending their lives because their families had arranged their marriages and they did not want to be separated. One of them died on the spot. On 13 November 2002, two young women consumed poison at a coffee plantation near their homes in Kerala. One of them was to be engaged on that very day, while the other was to be married in January. Both of them died on the way to the hospital. On 4 October 2002, two young women were found dead after they had consumed poison in the Satyamangalam forest in Tamil Nadu. They felt guilty for loving one another but also felt it was impossible for them to live with or without each other, as they wrote in their suicide notes. They begged their parents not to separate them in death at least and cremate them on the same pyre. On 25 August 2001, two tribal girls committed suicide. They were living together for some time and had unsuccessfully requested their families to allow them to marry.

 

They had sought help from the police and were receiving psychiatric treatment at the time of death. Their bodies were found side by side on a rock near an irrigation canal close to one the girls’ houses in Moolamattom East, Kerala.

The reports go on and on and cannot be reproduced here in entirety. In Kerala alone there were 21 reported cases of lesbian suicide in the span of six years, from 1995-2001. Information about the suicides is often sketchy or incomplete, but there seem to be some common patterns in the factors that contribute to the suicide. Often there is a mention of forced marriage, one or both of the girls are being forced into a marriage that they do not want, but which they feel they are powerless to stop. There is frequently an admission that it is impossible to live without the other person and, even though not stated directly, the suicide attempt itself conveys that the women feel it is impossible to live with the other also. In some cases, there are incidents of overt harassment from family or employers. Parents have tried to confine their daughters indoors for months together, to batter them physically and emotionally, to beat up their lovers, or then to report the couple’s flight as a case of kidnapping by the lover. There are reports of involuntary discharge from government service, and of prolonged forced isolation without food at the workplace. Where there are no signs of overt harassment it is clear that the families of the girls either do not know or then clearly disapprove of the relationship. Another recurring pattern is the feeling of guilt that the girls themselves feel about loving each other and about causing their families "distress".

As women who understand the dynamics of patriarchy, it is clear that we uphold a woman’s right to choose her own marital partner or to refuse to get married at all. Forcing daughters, sisters or nieces to get married, especially in the face of such "scandalous behaviour", is a common practice. It is a way to make women compulsorily heterosexual and to save the family from dishonour. The feeling that many of the women who committed suicide expressed was that they found it impossible to live with or without each other. Why did women feel that it was impossible for them to shape their lives with the lovers of their choice? One overwhelming cause that we can ascertain from the suicide notes is the tremendous social censure that comes with homophobia, so much so that women internalize it

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and feel guilty for loving, like they almost deserve death because they did the "unthinkable". This homophobia creates tremendous frustration and confusion for women because it gives them almost no room to love with dignity. The violence, social stigma, self-hatred and outright discrimination at work, often with a complete lack of support or affirmation from family and friends, can create a situation of extreme distress for women. Women who have committed suicide have had limited means or resources at their disposal. They are students who have no livelihood of their own, they are daily wage labourers, or women with little access to formal education or employment.

In small towns and rural areas especially, women who love women are completely isolated from any kind of support system. Often they have not even heard of other women who love women, are not aware of groups or people who could help in a crisis situation and cannot conceive of a viable alternative to marriage. This goes back to the whole problem of the general invisibility of lesbians in public space, as it is dangerous for women to be "out" in a hostile atmosphere, but this danger also prevents women from finding out about each other and imposes a silence on them. Homophobia prevents women from getting the help that they need when they most need it. It is tragic that at times young women have not even attempted to tell friends or family about their love and have chosen instead to end their lives because they know what is in store.

Women do not need to apologise, much less to kill themselves, for their most basic right: to be able to decide who to love and how much. In fact this claim harks back to the early discourses on reproductive rights when feminists asserted a woman’s right to control her body and her reproductive choices. In India the debates seem centered around marriage: the age of marriage, rights within marriage or the right not to marry, but they stop short of explicitly stating a woman’s right to sexual autonomy regardless of sex and of institutions such as marriage. It is clear that women who love other women are at greatest risk in a homophobic environment and nottheir friends and family who feel betrayed by their "unacceptable" sexual choices.

 

What can we do to make it safer for women who are confronting homophobia and who are battling great odds to find a freedom that was always theirs?

* (Source: Lorde, Audre. "Uses of the Erotic: The erotic as Power." Sister Outsider: Essays and Speeches. Freedom, CA: Crossing Press, 1984. 53-59.)

Sheba Tejani is a part of OLAVA, Organised Lesbian Alliance for Visibility and Action, and can be contacted at sheba_tejani@hotmail.com