 |
| Vol. 2 No. 2 |
July 2002 |
 |
| |
| Editorial |
|
A Basic Right to Rehabilitation |
|
The "mental health week"
will be here soon. Everyone will be talking
about the "stigma" of mental illness
and "daring to care".
Number one, "caring"
is nice, it is healthy and good. It is natural
and human to care. The world turns on love,
share and care It is not a "dare".
Number two, about "stigma":
Stigma has become a marketable commodity. Families
are talking about it, psychiatrists are talking
about it and wait even drug companies are talking
about it. Look up any pharma website which sells
psychoactive drugs. Typically, the drill about
"stigma" goes like this: "Mental
illness is a disease. Drugs are available to
cure this disease. Use the drugs. End stigma".
Backstage, the drug makers, the retailers and
the prescribers will laugh all the way to their
banks.
Vijaylekshmi, Nasra, Lekshmi,
Selvi, Santamani, Rasheea, Pattukani, Sarojani,
Anusuya, Gulnas, Vellaisamy, Krishnan, Sonaimuthu,
Prabu, Santhanakrishnan, Muruganantham, Parthiban,
Arumugam, Lekshmi, Periyasamy, Murugaraj, Samsudeen,
Rajan, Thankaraj and Radhakrishnan died, this
time last year, just a few weeks before the
"Mental health week", in Erwadi, Tamil
Nadu. They died of despairing discrimination
and physical, emotional and social deprivation,
abuse and violence. This is not stigma, as defined
in the above clinically sterile and commercially
viable way.
If the alternative to "stigma"
is a choice between "mental disease"
(whatever that is) and crippling drugs, we say,
go for stigma. Be stigmatised, stay low,
hidden, alone, but safe from overprescriptions,
irrational drug preparations, poly / multi pharmacy,
drugs hidden in your food, depot injections,
forced ECT, involuntary commitment, etc. etc.
Suna hai, many airloads of
our mental health professionals are landing
at Heathrow airport looking for greener pastures.
Our professional community has always been lamenting
the crying need for more professionals,
and so which ethical principle of the business
justifies this exodus? It is very hard to imagine
that needs in the UK are much more than needs
here. The downside is that we are about to lose
some of the better and the more sensitive carers.
The upside is that fewer drugs and ECTs will
be forcibly pushed onto communities. Adios,
fellas... |
|
|
| |
 |
|
 |
| www.camhindia.org |
1 |
aaina |
|
| 
|
| |
|
Can the new IMC
Regulations, 2002 regulate psychiatry? A Report |
| |
|
On 11th
March, 2002, the Indian Medical Council has issued
a notification on the "Professional conduct,
etiquette and ethics" Regulations, 2002. The
regulations are applicable to all "doctors
with qualification of MBBS or MBBS with PG degree
/ diploma or with equivalent qualification in any
medical discipline". Psychiatry, being a medical
discipline, comes within the scope of these regulations.
IMCR, 2002 covers the following
chapters- code of medical ethics, duties of physicians
to their patients, duties of physicians in consultation,
responsibilities of physicians to each other, duties
of physicians to the public / paramedical professions,
unethical acts, misconduct and punishment / disciplinary
action. At the time of registration, every medical
professional should issue a written declaration
pledging - service to humanity, utmost respect for
human life and dignity, service beyond religion,
race and politics, upholding patient interest and
confidentiality, upholding professional dignity
in the community and in peer relations. Formats
are given for the issuance of "fitness certificate",
maintaining proper medical record and a list of
various Acts under which doctors issue certificates.
In the appended list, the "Mental Illness Act"
[sic!] is mentioned. A complaints procedure is provided
for through the IMCR, 2002, including registration
of grievance or complaint against an erring professional,
method of inquiry, professional peer review, speedy
disposal, disciplinary action, deregistration and
punishment. |
| |
|
(...continued
on page 3...) |
|
Editorial Team
Bhargavi Davar
Sadhana Natu
Radhika Kulkarni
V. Radhika
Soumitra Pathare |
|

|
| |
aaina is a mental health advocacy
newsletter. Advocacy demands critical, creative
and transformative engagement with the state, policy
makers, professionals, law, family and society at
large. aaina will thematically cover issues
in community and mental health, NGOs in mental health,
self-help and healing, non-medical alternatives
in mental health, rights, ethics, policy and needs
of special groups. aaina provides a forum
for user expression of their experiences with mental
health services and debates issues concerning rights
of persons with psychiatric disabilities. We look
forward to meaningful dialogue with individuals
and groups alert about these issues.
Those interested in receiving copies
of aaina may contact us at wamhc@vsnl.net.
Write to us with all your suggestions, criticism
and viewpoints on the issues covered.
This issue of ‘aaina’ was
edited by Bhargavi Davar. |
|
Design and Layout
Anand Pawar
Printing
Anita Printers, Pune |
| |
Contact
Address
Center for Advocacy in Mental
Health
36 B, Ground Floor, Jaladhara Housing Society, 583,
Narayan Peth, Pune 411 030
Tel: 0091-20-4451084
Email: wamhc@vsnl.net |
|
 |
| aaina |
2 |
www.camhindia.org |
|
| 
|
| |
|
Regulation of doctor’s conduct includes
strength of character, qualification and continuing education
/ competence, meticulous record keeping (mandatory for
3 years). The doctor should prescribe drugs only with
generic names and ensure rational prescriptions. He /
she should observe the laws of the country, in which context,
along with other Acts, the Mental Health Act, the Drugs
and advertising related Acts and the Persons with Disabilities
Act are specifically mentioned. He / she cannot arbitrarily
refuse treatment to a needy patient. He / she must ensure
confidentiality, give information to the patient and relatives,
share a realistic prognosis, make appropriate referrals
following professional protocols (as laid out in the document)
and avoid unnecessary consultations. He / she must act
in public interest, as a good citizen, be co-operative
with authorities as well as with "paramedical"
services. In the paramedical services "pharmacy"
and "nursing" are mentioned. This is one place
where we see RED from the mental health point of view.
Our sense is that psychiatrists are too co-operative with
the pharmacy industry!!
Unethical acts under the IMCR 2002 are
soliciting patients, advertising and publicity, vested
interests in approving a drug, medicine or therapy, printing
of photograph for publicity, receiving incentives for
promoting drugs or treatments. There is a prohibition
on promoting "secret remedies", preparations
where the formulation is not known to the doctor. It is
unethical for a doctor to aid or abet torture, inflict
mental or physical trauma on his patient, concealment
of such acts by a peer, and euthanasia.
A violation of these regulations, adultery
or improper conduct, and any other criminal act is considered
as "misconduct" under the regulation and may
elicit deregistration, disciplinary action, or punishment.
With respect to certification, a very sore point among
human rights professionals in the mental health area,
the regulation is quite explicit: "Any registered
practitioner who is shown to have signed or given under
his name and authority any such certificate... which is
untrue, misleading or improper, is liable to have his
name deleted from the Register". The Drugs and Cosmetics
Act is not to be contravened- Specifically, prescribing
steroids and psychotropic drugs when there is no absolute
medical indication and secondly, selling Schedule "H"
and "L" drugs and poisons to the public except
to patient, are said to constitute "gross" misconduct.
Misconduct is also attributable to doctors
who perform or enable abortions for which there is no
medical, surgical or psychological indication.
Here again, some exploration is required from the psychiatric
point of view, because it is very easy to find
psychological indications. Any doctor not able
to show medical or surgical reasons, we are certain, would
be able to find psychological indications quite
easily, as this is such a large gray area.
The doctor is urged to uphold confidentiality
under all conditions except when a court calls for information,
when there is risk to self and community or where there
is notifiable disease. In mental health, the "risk
to self and community" is mostly left to subjective
assessments of professionals and families, so there are
issues to be addressed here. Also, breaching confidentiality
even if a court orders disclosure has been contested by
mental health advocates as violative of patient rights
and clinical ethics. Professionals have been urged to
maintain patient and professional dignity by further advocating
service and legal reform in this area and resisting different
pressures to disclose.
The IMCR also prohibits using brokers
for procuring patients, making untrue or misleading claims
about specialisation, and refers to the ICMR guidelines
for proper conduct of drug trials. These are all relevant
in the mental health sphere as well. Carer and user groups,
organisations acting as friends of persons diagnosed with
mental illness, individuals and activists, and mental
health professionals, could examine the IMCR 2002 for
what it offers by way of professional regulation of psychiatric
practise.

|
 |
| www.camhindia.org |
3 |
aaina |
| 
|
| |
| |
|
R Lakshmi Narayan vs. Santhi,
Civil Appeal No. 5028 (1999) decided on 1st of May
2001 before DP Mohapatra and UC Banerjee, Supreme
Court |
|
|
In yet another apex court
case, where the petitioner cited insanity
for obtaining annulment of marriage, no
one questioned the gumption of the husband
and no one talked about the right to life
or the right to treatment and care within
marriage. Also, the courts have dropped
the earlier talk about ‘unsoundness of
mind’, as enshrined in the civil laws,
to directly addressing ‘mental disorder’.
This shift in legal practice has several
questionable ramifications. |
|
|
|
The appellant, the husband of the
respondent, filed a petition seeking a declaration
that their marriage was null and void because of
the mental illness suffered by the respondent. Section
12(1)(b) and Section 5(ii) of the Hindu Marriage
Act 1955 were cited as grounds. The couple parted
company after 25 days of marriage. The appellant
charged that his wife suffered from a chronic and
incurable mental disorder and was not in a fit mental
state to lead a married life. Her "drowsiness"
and "refusal to have cohabitation" apparently
moved him to further investigate and find out that
she was suffering since childhood from a mental
disorder, a fact which her father allegedly admitted
to. The respondent refuted all the allegations,
claiming that the respondent’s motive was for a
bigger dowry and a second marriage. The trial court
had dismissed the petition on grounds that the petitioner
could not prove unsoundness of mind. While admitting
that it had no medical expertise, it did so after
having had the "privilege" of watching
the respondent give witness, the way she clearly
answered questions and her general demeanour.
The appellate court found fault
with the trial court for not having considered as
"evidence" the prescriptions issued by
a psychiatrist from Chennai. Unlike the trial court,
the appellate court accepted the fact of separation.
It also took serious note of the respondent’s admission
to having suffered a mental disorder and that she
was given depot injections. The case was once more
opened.
In the High Court, however, on
further contestation by the respondent, the original
judgment of the trial court was restored. The High
Court mainly considered whether the appellant was
aware of the mental disorder of the respondent before
the marriage. It held that the marriage was not
vitiated by fraud or misrepresentation, as the husband
had ample opportunity to interact with the respondent.
The Court did not accept that the respondent was
suffering from a chronic and incurable mental disorder
and that there was no cohabitation. |
|
The appellant filed in the apex
court, assailing the judgment of the High Court
under Article 136 of the Constitution. After studying
the relevant sections, and dismissing the husband’s
appeal, the Supreme Court held that these sections,
if established in a court of law, do disentitle
the party to a valid marriage. Since marriages are
voidable (and not per se null and void) using these
sections, such cases "in the very nature of
things call for strict standard of proof",
the onus of bringing such a case before the court
and the proof being "very heavy" on the
party seeking annulment. The court pledges to examine
the matter with "all possible care and anxiety".
Accepting as facts both the presence
of mental disorder as well as the separation, the
apex court held that this was no basis for inferring
that the respondent was unfit for marriage and the
procreation of children. It would be, in the court’s
view, an unreasonable and impermissible inference.
To make this inference, it needed to be further
established that the ailment is of such a kind or
to such an extent that it is impossible for her
to lead a normal married life. It would be fair
to read the law in this manner, according to this
honourable court. The relevant sections and the
burden of proof enshrined in them require a far
more stringent interpretation than that accepted
by the appellate court. Further, the High court
may also be faulted for not formulating an appropriate
question before law as mandatory. However, considering
the manner in which the case has proceeded until
the high court, the court could not be faulted for
having dismissed the petition and the apex court
did not find this a fit case for interfering with
the HC judgment. The appeal was dismissed.
Jyoti Dutt from New Delhi shared these materials
with Aaina sourcing from Supreme Court Cases (2001)
4 SCC pp. 688-693

|
 |
| aaina |
4 |
www.camhindia.org |
|

|
| |
|
|
|
An angry
user gives 5 reasons for the close links between
psychiatry and forced treatment
Notes from "Noah" |
| |
|
|
|
|
Once a person is declared
mentally unfit, that person loses the
right to say "no" to psychiatric
treatment, loses the right to various
aspects of his own life and loses the
right to litigation or to question the
diagnosis and treatment he has been given.
That person literally becomes a persona
non grata and loses citizenship overnight. |
|
Historically the State has always
been oppressively paternalistic in its attitude
towards persons labeled with mental sickness. Most
laws, including the Indian laws, are testimony to
this. What is so special, so abhorrent about the
"mentally ill" that they have been singled
out among a million others who fall sick everyday?
For example, why is someone suffering from diabetes
or cold allowed the luxury of seeking homeopathic
treatment or even trying homegrown herbal remedies?
Any ill person is just ill and therefore, has to
be treated without compromising his freedom in any
way whatsoever.
Firstly, unlike other people suffering
from physical diseases, the "mentally ill"
are supposed to have lost their capacity to take
responsible decisions.
Secondly, psychiatry, not so respected
within the hierarchy of all medical disciplines,
and in its strife to be like a true science, has
produced a dichotomy between the body and mind,
where the mind is reduced to a mere brain. Psychiatry
has very little to do with the mind. The "psyche"
part has all but been surgically removed from it.
Psychiatry is rooted in German experimental psychology,
racist eugenics theories, and anti-human materialistic
opinions parading as scientific facts. The promotional
activities and tremendous profits of the major drug
companies must be clearly recognized for any accurate
understanding of the expansion of psychiatry. Psychiatry
ignores all comprising man’s "inner" world
of thoughts, feelings, values, aspirations, hopes,
dreams, fantasies, desires, intentions, goals, and
ultimately, life itself.
Thirdly, the State, the community
and the family have bought this pseudo-scientific
rationale lock, stock and barrel. No wonder then,
that the unsuspecting public is completely persuaded
by the biological and genetic bases of "mental
illness". |
|
Fourth, the reason why the State
has been traditionally inhuman in their treatment
of the "mentally ill" has been because
the "mentally ill" have been perceived
to be "lesser humans". This is a mindset
that still rules in society throughout India, China,
North America and other parts of the world. The
"mentally ill" by virtue of their temporary
and at times, fleeting loss of reason, are the world’s
most "muzzled" individuals.
Finally, psychiatry, with active
encouragement by the State, has a long and ignoble
track record of blaming social and economic dysfunction
on its primary victims. In the 1800’s psychiatry
pathologised the tendency of slaves to run away
and called it "drapetomania", a "disease"
which no doubt called for heroic "therapies".
During the industrial revolution, it found its calling
in the imprisonment and torturous experimentation
on the unemployed poor. Domestic abuse and adverse
social conditions are major factors in the creation
of "mental illness", yet science continues
to prescribe drugs for "unbalanced brains."
The modern "scientific-secular" family
has reposed its faith in the goodwill of the doctors.
It seems, to adapt a quote from Richard Nixon, "If
a doctor does it, that means it is medicine."
Everybody believes that the side
effects of drugs are transitory in nature. Actually,
it is the mental state, which is transitory, yet
nobody can believe this except the "mentally
ill" themselves! There is also a period of
reckoning, introspection, self healing and remission
for the person, which again seems incredulous to
society. This positive development is naturally
attributed to the psychiatric medicines. Even while
everyone says that the "mentally ill"
must be responsible for their own "treatment"
the healing process is credited only to the medicines.
All this reinforces the myth that the drugs are
harmless, have little side effects and that they
work to restore the bio- chemical imbalance in the
"mentally ill" person’s brain.
There is a fatal kind of paternalism
in society which is to the detriment of the "mentally
ill". What is seen as a "little"
curtailment of the basic human rights, a "little"
deprivation of the right to law, a "little"
deprivation of rights to inheritance, all these
are seen as small losses in comparison to benefits
derived from restoring "sanity", whatever
that is, by whatever available means. |
 |
| www.camhindia.org |
5 |
aaina |
|

|
| |
|
Non-Pharmaceutical
Approaches to Mental Health
Bhargavi Davar
In June, a continuing medical education
program of 15 course credit hours on "Non-Pharmaceutical
Approaches to Mental Health" was organised
by Safe Harbor, a leading non profit organisation
in the US educating the public, the medical field
and government agencies on the use of alternative
mental health.
Dan Stradford, the president, in
his introduction, pointed out that psychiatry does
not take the effects of drugs very seriously. Putting
on 60 kilos of weight is a primary and very risky
health effect of anti-depressant use, this cannot
be called a "side effect" by any standard.
Other than the health and brain damaging effects
of psychotropics, such drugs do not address the
root causes of the mental symptoms, which means
life long use of risky drugs to obtain mere symptom
relief. The overemphasis on drugs inhibits personal
growth, as it limits individual creativity in dealing
with crises and it creates an artificial state of
mind.
The objectives of the program were
to educate on (1) medical conditions that present
as psychiatric symptoms (2) hormonal causes of emotional
disturbances (3) nutritional treatment and herbal
remedies for anxiety and depression (4) lab testing
for underlying causes of mental symptoms and (5)
sharing case histories of successful recoveries
using alternative mental health. Behind the many
inspiring and experienced lecture presentations
consolidated in this unique program, remains the
pioneering work done by biological psychologist
Abram Hoffer. The experts were mostly from the fields
of psychiatry, psychology, nutrition and biology.
Dr James Croxton, a nutritional
psychologist from Santa Monica talked about brain
metabolism and the role of nutrition here. He runs
a regular course in his university department on
nutritional psychology. He also sustained a self
help group called ‘MANA’ ("Mind And Nutrition
Awareness") for twelve years. In the program,
he introduced the concept of "somatopsychic"
phenomena (in contrast to the "psychosomatic"),
i.e. mental experiences caused by biological, physiological
or medical reasons. |
|
There was a demonstration of the
enormous lab testing possibilities in the presentation
by Jeff Baker from the Great Smokies Diagnostic
Labs. After outlining the molecular basis of what
he called "chronic metabolic disorders"
-(we call them "mental disorders"!)-,
Dr Baker talked about lab testing for amino acid
deficiencies, metal poisoning, hormone deficiencies,
vitamin and other nutritional deficiencies. It was
so surprising to know that chronic candida, a common
reproductive tract infection in women, can cause
a range of mental experiences including fatigue,
poor memory, being "spacey", insomnia,
hypersomnia, anxiety, and mood swings.
Dr Charles Gant (MD, Ph D) who
wrote on the Natural treatments for addictions,
compared the conventional approach to treatment
of mental disorder with what he called the GANTS
method, a method which recognises the role of Nutrition,
Toxicity and Stress in the causation of mental symptoms.
An important intervention step in these presentations
is the examination of the nutritional and toxicity
status of individuals. He concluded that "The
number one health problem in the US and probably
the entire world (alcoholism) is not being addressed
in a rational, efficacious, scientific and safe
manner. Until such scientific principles are brought
to bear on the treatment of addictions it is unlikely
and probably impossible for substantive improvements
in care to occur".
Dr Stuart Shipko, MD (Psychiatry)
and director of Panic Disorder Institute, I am sure,
has saved a few hundred people at least from the
debilitation and disability caused by psychiatric
medication. He did this by simply examining the
possibility that the patient could have been suffering
from a medical disease. Apparently, the mental health
system fails to detect one in six physical diseases
causing a patient’s mental disorder. This system
also failed to detect more than half of the physical
diseases that were exacerbating a patient’s mental
disorder. The importance of doing mandatory physical
exams became glaringly evident through his fascinating
lecture. This is so obvious, that we wonder why
it is not being done. In the US health care system,
which is totally run by private insurance, it is
cheaper for the insurance companies to push psychiatry
(with little or no testing) than go for expensive
medical testing. By the time Dr Shipko went through
the whole list of medical conditions that can present
as |
 |
| aaina |
6 |
www.camhindia.org |
|

|
| |
|
mental disorder, it was evident
that minor to major mental ailments could well have
organic causes that are misdiagnosed. Mercury poisoning
(children’s vaccines, dental fillings, effluents
from coal fired plants, contaminated fish), other
fungal, environmental, metal and gas poisoning,
problems with adrenal and thyroid secretions, vitamin
and other nutritional deficiencies were discussed.
These lectures showed that with modernisation and
mechanisation, as our food culture, eating habits
and environment changes, we can expect a great impact
on physical as well as our mental health. This seems
such a self evident lesson, yet it needs to be taught.
Other fascinating presentations
included Dr Gant’s "Complementary solutions
for children diagnosed with Attention Deficit Disorder",
Dr Hyla Cass’ "Nutritional and herbal remedies
for depression" and Dr Cynthia Watson’s "Role
of Hormones in mood disturbances". The role
of various essential fatty oils in child brain development,
vitamin deficiency and mental disability in children,
using common herbs for treatment of depression,
hormonal treatment for dealing with reproductive
health linked mental changes, etc. were some of
the themes that were discussed in these presentations.
The program ended with moving stories of recovery
by using diverse, and for us, here, hitherto unexplored
tools, for example, acupuncture and hormone treatment.
The claim which Dan started out with, that a psychotropic
drug is not a natural body nutrient, and let us
use alternatives to drugs, was well validated through
the program. For the first time, I met so many mental
health professionals who were trying out a wide
variety of solutions to address individual mental
health needs, instead of just pushing prescriptions.
Thanks to Dan Stradford of Safe
Harbor Project, LA, for quickly and steadily organising
the required sponsorships which allowed me to travel.
Thanks to Judy for sharing her home with me during
my visit. Thanks to Dan and Betty for the many wonderful
drives in LA during my visit. News about the program,
and possibly, about purchasing recorded tapes of
the lectures, may be obtained from Dan at www.alternativementalhealth.com

|
 |
|
Market
khabbar
Economic Times (July 23rd,
2002) reported that Sun Pharma, a noted maker
of psychoactive drugs in India, based in Gujarat,
posted a net profit of Rs. 48.07 crore for
the quarter ending July 30, 2002, showing
an 18% increase over the same period for the
last year.
The Alliance for Human
Research Protection raised an alarm recently
about the American Psychiatric Association’s
Annual Convention this year, which attracted
around 14,000 doctors and 4,000 drug company
representatives [only 30 per cent] as reported
in www.researchprotection.org
/informail/0602.02.html. Many incentives
and freebies were offered to the experts (and
sometimes refused) including airport pick-ups,
free meals, bags, etc. An interesting marketing
strategy employed by one drug company was
the "virtual schizophrenic experience".
Using virtual reality technology, viewers
were given an opportunity to experience, live,
what it means to live with schizophrenia.
We wonder if this virtual reality tour included
live experience of long term iatrogenic damage
and disability caused by neuroleptics. Experts
expressed reservations about maintaining professional
dignity and objectivity against such aggressive
marketing onslaught.
Among the by now notorious
medical departments in Gujarat involved in
administering Sodium Pentathol to the "Godhra
accused", a well known psychiatry department
from Vadodhara has been mentioned. The UN
banned Sodium Pentathol in 1999, naming this
procedure as one type of "torture".
[EGMail from South Asian Medical Ethics
Group.]
Dr. Reddy’s showed 58.3%
growth for fiscal year ending 2002. This is
"predominantly due to blockbuster drug"
Fluoxetine [famous as PROZAC], which contributed
3286 mn. rupees of a total profit of 15,578
mn. The net growth of Fluoxetine over last
year is 24.9% The formulation showed a $13.5mn
sales in the March quarter as against an expected
$9mn., increasing the operating profit margin
by 33.2% for the year. Not expecting another
blockbuster in the near future, the company
expects a 25% drop in profit, which they hope
to make up by international dosage sales and
bulk sales in the developed markets. ["Take
Stock, Vol 1 Iss 4, June 2002] |
|
 |
| www.camhindia.org |
7 |
aaina |
|

|
|
|
|
disease is by choice
my mother had jungle rot
and my father, gangrene
I went mad
believing all my red corpuscles
were explosive devices
commanded by Mao
and one false step
would blow my mind
so I moved with crazy grace
the way the cripple
and the child dance
every movement a prayer
there were cures
my mother washed
her hands every two hours
for a year
and they cut off my father’s toe
In mid dance
I was locked
in a room with no handle
on the door
you may ask
how I came to be here
it wasn’t easy
Virginia Davis, Madness Network News,
Winter 1979, Vol 5 (3)
In Bapu Archives, kindly donated by Mira Sadgopal.
|
|
|
Delhi psychiatrist challenges peers
by contesting medical feasibility of ECT without
anesthesia
Saarthak, a voluntary organization
from New Delhi, has filed a petition in the Supreme
Court (Civil writ petition No. 562). Their petition
has asked the apex court to issue necessary directives
to each state and union territory for complying
with setting up statutory authorities under the
Mental Health Act, 1987. The petition challenges
the constitutionality of Section 81(2) of the Mental
Health Act and says that this section is violative
of human rights. This section provides that a mentally
ill person may be used for the purposes of research,
if such research is of direct benefit to him for
purposes of diagnosis or treatment. It further provides
that when such person is a voluntary patient, he
may give his "valid" consent for such
research or where such person is incompetent to
give his consent, by reason of minority or otherwise,
the guardian or other person competent to give consent
on his behalf can give consent in writing for such
research. The petition argues the inadvisability
and "barbarity" of ECT without anesthesia
and highlights the risks involved (bone fractures
and other bodily injuries; problems with ECT in
general, such as confusion, loss of memory and back
problems). While the petition admits that modified
ECT may be beneficial, it talks about prescribed
guidelines even in such cases. The petition prays
for avoidance of physical restraint and confinement,
except under "extreme" circumstances,
where guidelines would specify assessment of risk
to self and others. Even when used, such practice,
it is urged, should not be an indefinite one. 6
hours is being suggested as acceptable period for
review, which would be done by a Medical Board.
The petition appeals for the prohibition on chains
and persuades the use of alternatives such as cotton
bandages or sedatives in extreme cases. The petition
persuades the provision of "psychiatric therapy"
[sic!] and proper facilities for rehabilitative
counseling, and quarter way homes. Patients should
be informed about the legal aid services provided
for by statute.
(Papers shared with us by Mr SK Ravi of Action
Aid India, New Delhi)

|
 |
| aaina |
8 |
www.camhindia.org |
|

|
|
|
|
Mental health professional’s response
"In Gujarat, mental health
professionals have been working with violence victims
in government hospitals and relief camps. However,
the response has been feeble when compared to the
Bhuj earthquake. The most important reason for this
is the fear and uncertainty of the situation. Second,
the sanction of violence by a large majority has
affected mental health professionals as well. Gujarat
needs a long-term plan for community based psychosocial
intervention using volunteers. Every victim has
a right to mental health relief for a reasonable
period, provided by the State. Research or assessments
must include an action component; victims should
not be viewed as a laboratory. Counsellors must
plan to work on long term conflict resolution and
move to the centre of the disaster zone, not hide
in the periphery. In Gujarat, the mental health
fraternity was silent fearing the disruption of
"therapeutic neutrality". This is a denial
of professional responsibility. Mental health professionals
need not be sloganeers, but they must raise sane
voices during difficult times. [O]n the whole, silence
has transformed the profession’s empathy into apathy.
This collective silence must be broken with concerted
action towards healing and prevention".
Dr Harish Shetty, Psychiatrist, MAITRI, Mumbai
in Issues in Medical Ethics, Vol. 10(3),
July-September 2002.

| Saying thanks
To Jos Brand, a Development Consultant
from Holland, who kindly donated Rs. 1000/=
to Aaina, because he "liked
it very much"!
Thanks, Jos! |
|
|
Who
is a mentally healthy woman: A feminist therapist
answers
A mentally healthy woman is one
who
- Values herself as an individual
and as a female rather than depreciating herself
as a woman
- Chooses behaviours according
to their suitability and to the situation, deliberately
resisting conforming to female gender stereotypes
and certainly not conforming to them unwittingly
- Consistently tends towards emotional,
social and economic self-sufficiency, striving for
separateness and autonomy before seeking interdependence
- Blends autonomy with interdependence
in the form of a selected number of deep relationships
with others in personal and social activities
- Appreciates differences as much
as similarities, preferring variety in herself and
others to
stereotypes
- Does not victimise herself, does
not let herself be victimised, and does not present
herself as a victim
- Enjoys the power of her emotions
and her self, and displays this power through vivacity
and
energy
- Orients herself toward reality
and realism, avoiding overreaction in favour
of accepting herself, others and the world for what
they are
- Takes risks and extends herself without placing
too much emphasis on either success or failure
From Arrows for Change, "Women’s
Well-being: Reframing Mental Health" Vol.
7, No. 3, 2001 (www.arrow.org.my)

|
 |
| www.camhindia.org |
9 |
aaina |
|

|
|
|
|
The gains from the recent
SC orders are meagre, says disability advocate
An interview with Prof Amita Dhanda
[NALSAR, Hyderabad] |
| |
|
|
|
What happened after Erwadi with
respect to the supreme court?
Dr Dhanda- The SC took suo moto
notice of the Erwadi incident. On its own, it asked
the chief secretary of the TN government to file
an affidavit reporting exactly what happened. They
came to know of cases where persons labeled mentally
ill were being kept in very inhuman conditions in
other states also. So they asked all states to file
affidavits. Saarthak, an NGO, also filed a petition,
not raising issues such as Erwadi, but raising the
question of giving unmodified ECT to patients. It
also raised questions relating to psychiatric research
being carried out which are not directly benefiting
the patient. There is a provision in the mental
health Act that allows this. The MHA says that you
can carry out experimental or beneficial research
on a person with mental illness with her or his
consent. But equally, you can also do it without
the consent whether the research is directly beneficial
to the individual or not. The Saarthak petition
is asking for removal of this provision altogether
as unconstitutional. About ECT, they are saying
that unmodified ECT should be banned, that the persons
who administer such ECT should be criminally prosecuted
and that a committee of NGO representative, social
worker and a psychiatrist should regulate ECT practice.
Saarthak has also asked for the implementation of
the statutory provisions of the MHA, such as the
State Mental Health Authority, the licensing authority,
etc.
This intervention by the SC is
yet another one in a long line of such interventions.
Does this case have implications that are far-reaching
or different?
To the best of my knowledge, regulation
of ECT as well as consent in experimental research
are brought before the SC for the first time. The
Goa bench of the Bombay High court challenged unmodified
ECT use, ruling that such like ECT cannot be administered. |
|
The Saarthak challenge is to the
MHA provision that research can happen whether
beneficial to the patient or not; and whether he
or she gives consent or not. They are saying that
using surrogate consent is unconstitutional. There
are indeed problems with these provisions, but a
number of people are saying that maybe you should
have a closer look before writing off the whole
thing as unconstitutional. If the provision was
struck off altogether, it would discourage mental
health research which in the long term may work
against the interests of persons with mental illness.
The petition could have suggested the setting up
of ethics committees on a mandatory basis or a more
public centric process of scrutinizing research.
There is a problem with surrogate consent. The problem
is that there is a thin line between consent with
understanding and consent with undue influence.
But rendering the provision for conducting research
altogether as unconstitutional would prohibit even
such research where valid patient consent is there.
What if a patient or a class of patients want some
research to be conducted, which they feel is beneficial
to them? The petitioner could have asked the court
to read up that provision in more plausible ways,
which will limit the scope of surrogate consent
and give greater validity for patient consent. This
way, both the interests of the patient autonomy
as well as the right to good quality care could
have been upheld. If you were to strike it down
today, then tomorrow you will have to start the
process all over again because of the feeling that
law should permit such research, which is in the
interest of the patient.
Is there any authority, which stipulates
ethics committees?
Not the MHA. The ICMR does require
that ethics committees should review all medical
research proposals. Institutions in India, which
undertake medical research, do have ethics committees
with external members. Psychiatric research proposals
also have to go through those ethics committees.
|
|
 |
| aaina |
10 |
www.camhindia.org |
|
| 
|
| |
|
But the statute does not speak
about it. In the case of persons diagnosed with
a mental illness, it may be wise to have a statutory
protection. Such a ruling by the SC would also give
legal validity to ethics committees in general,
giving such committees more teeth.
What are the other contentions
in the Saarthak petition?
The petition is looking at the whole issue of the
rights of persons with mental illness in a very
limited manner, where you are asking for nothing
more than the setting up of so many statutory authorities.
Setting up of authorities, generally speaking, becomes
like largesse giving of the State. It does not really
impact upon a person with mental illness as he or
she does not have a say in the matter of who you
are putting into the board of visitors, what kind
of people are coming into the state mental health
authority (SMHA), etc. The SMHA is only a recommendatory
body. The only thing is that every kind of service
including prisons and jails are within the purview
of the SMHA. The rest of the statute only speaks
about psychiatric hospitals and nursing homes, and
does not speak of any other mental health facility.
Psychiatric departments in general hospitals have
been explicitly excluded. The jurisdiction of the
SMHA is much wider, but it is purely recommendatory.
So, if the state is passive about the recommendations,
the Act does nothing to protect.
You are saying that the suo moto
petition is very much within the MHA framework,
which is anyway not safeguarding patient interests
in any way?
Absolutely, that is what I am saying. What we need
to appreciate is, what exactly is the MHA doing.
As a statute, if it is only regulating entry and
exit from a mental hospital, then the statute has
not done anything much. These are questions, which
possibly can be raised in the petition, but the
petition is primarily stressing on implementation
aspects of the MHA. Suppose all the authorities
were in place and functioning effectively, would
we have a rights sensitive regime for persons with
mental illness? Perhaps not, and therein lies our
anxiety. |
|
In response to Erwadi, the SC suo
moto action as well as the petitioner has assumed
that if the MHA had been effectively implemented,
there would have been no problems and all human
rights would have been fully restored. Obviously,
that is not a correct assumption. Could it have
been possible for some of the Erwadi residents to
make a complaint to some authority about their neglect
or overall deprivation? Was there some tribunal
or authority given by the MHA who they could have
approached? Is there a complaints procedure in the
MHA?
No, there is nothing. What they
could have done is just to file a writ petition
in the High Court with help from state legal aid
authorities. But if you were chained to your cot,
how would you do that? In other countries you would
have mental health provisions and processes of compulsory
review. The SMHA is not somebody you can complain
to. The board of visitors will only go to the government
mental hospital or the licensed psychiatric facilities.
Erwadi was not a licensed facility. There was a
whole lot of persons who were illegally detained.
The court is only seeing it as people who are found
in incorrect sites, of wrongful confinement. The
court is saying that, here is a person with mental
illness, the correct place for them to be is in
the mental hospital, not in the community. Affidavits
from every state say that they are not keeping people
in chains as in Erwadi. But again and again the
SC has been encountering data showing otherwise.
The only immediate solution they found was to send
people to the mental hospital. Once you get in there,
a whole range of deprivations starts to happen,
including social ostracism. The court has not addressed
these issues in this case, nor does the MHA. There
is a necessity for legal provisions regarding ways
of getting recovered people back into the communities
and what to do about errant families. These issues
have been repeatedly coming up right from the Shahadara
petition to Ranchi and so on, this is not the first
time. Every time the court looks at it as if something
new has happened, and has not really tried to work
out the directives. If you want the state money
to be invested in mental health, then you have to
say, create and diversify the mental health |
 |
| www.camhindia.org |
11 |
aaina |
|
| 
|
| |
|
services, facilitate rehabilitation
and restore civil status this is an absolute basic
right. These questions are absent. The full implementation
of MHA is not going to be a solution.
In the area of health, policy comes
first and law comes later. In fact, in public health,
the problem is that you do not have any legislation
backing policy. There are problems with health policies,
but at least there are people who are looking at
what is the policy. In mental health, the reverse
seems to be happening. Every few years, you have
a SC case which triggers off a debate about MH and
law, but hardly any kind of discussion on the policy
front. How do we explain this?
The care and treatment for persons
with mental illness from the 19th
century onwards has been institutionalized care.
The abuse happening within private institutions
inspired the birth of a law. Law came in as a positive
measure, when people were saying that they wanted
their own practice to be regulated. They wanted
that kind of a shackle. Then community care came
in but even then mental health care was the only
one that continued to be regulated by the law. In
the 1980s you had an NMHP (National Mental Health
Program) coming, but this did not in any way engage
with the legal regime. Somewhere there was the anxiety
that they had engaged earlier and failed. There
was the fear that possibly they might also come
within the ambit of the law, and that, they did
not want. That is my reading of it. Subsequently
because of this fear, there was some kind of a policy
happening, some initiatives carried momentum. But
you cannot possibly construct a mental health policy
without engagement with the law. Also, lot of these
discussions happened only within psychiatric circles.
The court was constantly asking psychiatrists to
help it to adjudge ‘insanity’. This is where the
professionals have come in always. Otherwise they
have in recent times always sidestepped the law.
Now, for the first time a psychiatrist is asking
the supreme court to rule on professional regulation
issues and the medical feasibility of a particular
practice (ECT). This is a positive development.
|
|
Is it correct to say that the MHA
does not tell you what should be allowed to happen
within licensed facilities: whether, for example,
they should do family therapy, psycho therapy, what
kind of treatment you should get, what should be
the quality of that treatment, whether there should
be a rehabilitation program, whether there should
be rationally prescribed drugs, regulation of ECT
procedure, an updated essential drugs list? Is the
right to rehabilitation as a fundamental right built
into the MHA?
No, it is not. The minimum standards
of care mentioned therein are all quantitative,
such as ratios of doctor/nurse/patient, physical
infrastructure. There is no mention at all about
the quality of care. It is not in the Act nor is
it in the rules. The Act is basically about entry
and exit from mental hospitals, which was there
in the Lunacy Act anyway. So, if in 2001 or in 2002,
you are filing a petition in the apex court, and
you are only asking for the implementation of the
Act, and actually believe that the implementation
of the Act is going to make for a better deal for
persons with mental illness, you are living in a
world of fancy.
The critical issues about the quality
of care and rehabilitation, do they need to come
into the law?
There is a need for placing general
principles of care and treatment within the law,
and to recognize that the psychiatric patient needs
an active protection, but the content may not find
a place there.
Do you see anything positive about
these interventions?
For the first time, nearly every
one, lay persons as well as professionals have woken
up to the tragedy evoked by Erwadi, to the fact
that a certain segment of society is living under
such conditions and are treated like that.
- Interview by Bhargavi Davar
Dr. Dhanda can be contacted at amitadhanda@rediffmail.com |
 |
| aaina |
12 |
www.camhindia.org |
|
| 
|
| |
|
The WHO’s global initiatives in mental
health are not "rights sensitive" says UN accredited
NGO
The buzz in the mental health world these
days is the WHO’s world initiatives in mental health.
Following the release of the World Health Report, 2001,
the WHO has been putting together advisory consultations
in many countries around the world, in order to come up
with "modules" or manuals that will aid governments
in mental health sector improvements. Several topics are
being planned as a part of these manuals. This is a more
proactive role that we see of the WHO in recent times,
which has hitherto played an almost passive role with
respect to mental health globally.
David Oaks, chief of Support Coalition
International, a world network of over a 100 grassroots
organisations fighting for human rights within the mental
health system, asks a pertinent question about this initiative.
For years, the WHO multi-centric outcome studies have
highlighted the triumph of traditional societies, including
India, in providing the social conditions required for
a better prognosis for persons diagnosed with mental illness.
Apparently, there is something about such societies, whether
nature or nurture, which is more healing for the persons
so diagnosed. Why is it that this very same organisation
is now creating "templates" for these very same
societies based on a completely alien, western model,
which anyway, as we all know, has not done all that well
in comparison? When asked by the WHO to comment upon the
"modules", SCI, the only UN accredited NGO in
mental health worldwide, has recommended that the manuals
be put on hold until the WHO adequately addresses issues
of human rights and empowerment within the mental health
service system. The charge is that while the WHO manuals
make constant reference to "human rights", the
implementation part is not spelled out. "More of
the same", without adequate protection of human rights,
is worse than doing nothing, according to SCI. While the
WHO manuals (apparently) talk about advocacy positions,
in the actual consultative processes, they have not involved
any leadership from consumer organisations and support
groups. Mostly, the consultants have been the psychiatric
professionals only. With respect to India, too, this has
been the case.
[SCI network mail. For more details
contact SCI at www.mindfreedom.org].
|
|
On paranoia-
A professional crisis or a deep philosophical
dilemma?
"Psychologists feel
that they have learned a great deal about
this form of emotional disturbance, merely
by following paranoids around. The main
thing they claim to have learned is that
paranoids suffer from the delusion that
someone is following them. This, of course,
is nonsense. The people followed by psychologists
don’t suffer from a delusion that they
are being followed: They really are being
followed by the psychologists, who mistakenly
diagnose them as paranoid because they
exhibit symptoms of imagining they are
being followed. Except, as previously
explained, they don’t just imagine it.
When they aren’t being followed, they
don’t have the symptom. Only, the psychologists
never see them when they aren’t being
followed." (From
the ‘Mad Weirdo Watcher’s Guide’, 1982) |
|
|
|
Drug Warning
Bristol GlaxoSmithKline
has been now forced to admit that paroxetine,
a widely prescribed antidepressant and
the company’s best selling drug, can cause
severe withdrawal symptoms when stopped.
For many years, the drug has been advertised
as "non-habit forming". It roped
in about 10% of the company’s overall
revenue. The FDA has published a new product
warning about the drug, and the International
Federation of Pharmaceutical Manufacturers
Associations declared the company guilty
of misleading the public about paroxetine.
The drug can cause intolerable withdrawal
symptoms, such as bad dreams, paraesthesia,
dizziness, agitation, sweating, and nausea.
Paroxetine apparently has one of the highest
rates of side effects among all antidepressants.
[Source: www.psychminded.co.uk/news/
0302/withdrawal%201.htm] |
|
 |
| www.camhindia.org |
13 |
aaina |
| 
|
| |
|
|
|
Report
of a Visit - Excerpts
By
Anil Vartak, Pune |
| |
|
"Self-help support" in
groups for persons suffering from mental illness
and their caregivers is relatively a new concept
in India. We have been working as a self-help support
group (Ekalavya) in Pune, India for last
three years since 1997. However, we have had a feeling
that our quality of work was not up to the mark
for the following reasons: a) The number of members
was not increasing b) We were lacking a neatly defined
structure c) Some members as well as some professionals
were skeptical about usefulness of a support group.
These problems made us realize the need for a more
organized approach for future growth.
Last year, as Secretary of the
Pune chapter of the Schizophrenia Awareness Association,
I was extended an invitation to visit some mental
health organizations in the USA. I prepared for
this trip both individually (through an introductory
correspondence course for mental health facilitators)
and within the Eklavya group through discussion.
The immediate objectives of my trip were to help
us redefine our aims and objectives, to enable us
to conduct our group activities in a more skillful
way, and to assist us in designing and producing
educational materials to support our activity. The
most critical area, it seemed to us, was defining
the procedure for group meetings. We were learning
by trial and error, but that has its risks. We felt
the need to learn from other groups who were more
experienced and working successfully.
I reached New York on 29th
May and left from New York | | | |